How patients with gynecological cancer experience the information process

被引:16
作者
Carlsson, ME [1 ]
Strang, PM
机构
[1] Univ Uppsala Hosp, Dept Gynecol Oncol, S-75185 Uppsala, Sweden
[2] Linkoping Univ, Palliat Res Unit, Vrinnevi Hosp, S-60182 Norrkoping, Sweden
关键词
cancer; gynecological; patients; information;
D O I
10.3109/01674829809025697
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
This qualitative study was designed to explore the Kind of experiences women with a diagnosis of gynecological cancer have with regard to information given during their illness and how it could be improved. Data were collected through a semistructured interview which focused on the 24 women's experiences of the information given. The interviews were tape-recorded and transcribed verbatim for each participant, and analysed using a content analysis. Two main themes were revealed: to actively address questions, and the right to receive honest information. The results also include a short description on how information tvas offered, the patients' opinion of it and holy the patients had sought information for themselves. When patients address questions they want honest answers. Some effort should also be made to identify patients who do not want information, if it is in accordance with the patient's and next-of-kin's wishes, efforts should be made to provide information at timer when both ran participate. Information given jointly to the patient and her family lessens the burden for the patient. In Sweden today, as a result of recent political decisions, caregivers must also consider the need to discuss economic issues.
引用
收藏
页码:192 / 201
页数:10
相关论文
共 39 条
  • [1] Bauman Laurie J., 1992, Journal of Psychosocial Oncology, V10, P1
  • [2] INFORMATION AND DECISION-MAKING PREFERENCES OF HOSPITALIZED ADULT CANCER-PATIENTS
    BLANCHARD, CG
    LABRECQUE, MS
    RUCKDESCHEL, JC
    BLANCHARD, EB
    [J]. SOCIAL SCIENCE & MEDICINE, 1988, 27 (11) : 1139 - 1145
  • [3] Brandt B, 1991, Oncol Nurs Forum, V18, P1221
  • [4] Patients' beliefs about cancer management
    Buchanan, J
    Borland, R
    Cosolo, W
    Millership, R
    Haines, I
    Zimet, A
    Zalcberg, J
    [J]. SUPPORTIVE CARE IN CANCER, 1996, 4 (02) : 110 - 117
  • [5] PATIENT PARTICIPATION IN THE CANCER CONSULTATION - EVALUATION OF A QUESTION PROMPT SHEET
    BUTOW, PN
    DUNN, SM
    TATTERSALL, MHN
    JONES, QJ
    [J]. ANNALS OF ONCOLOGY, 1994, 5 (03) : 199 - 204
  • [6] CAIN EN, 1986, CANCER, V57, P183, DOI 10.1002/1097-0142(19860101)57:1<183::AID-CNCR2820570135>3.0.CO
  • [7] 2-3
  • [8] Educational support programme for gynaecological cancer patients and their families
    Carlsson, ME
    Strang, PM
    [J]. ACTA ONCOLOGICA, 1998, 37 (03) : 269 - 275
  • [9] THE EFFECT OF EXPERIENCE ON RADIATION-THERAPY PATIENTS DESIRE FOR INFORMATION
    CASSILETH, BR
    VOLCKMAR, D
    GOODMAN, RL
    [J]. INTERNATIONAL JOURNAL OF RADIATION ONCOLOGY BIOLOGY PHYSICS, 1980, 6 (04): : 493 - 496
  • [10] INFORMATION AND PARTICIPATION PREFERENCES AMONG CANCER-PATIENTS
    CASSILETH, BR
    ZUPKIS, RV
    SUTTONSMITH, K
    MARCH, V
    [J]. ANNALS OF INTERNAL MEDICINE, 1980, 92 (06) : 832 - 836