"A place at the table:" a qualitative analysis of community board members' experiences with academic HIV/AIDS research

被引:20
作者
Safo, Stella [1 ,2 ,3 ]
Cunningham, Chinazo [1 ,2 ,3 ]
Beckman, Alice [3 ]
Haughton, Lorlette [2 ]
Starrels, Joanna L. [1 ,2 ,3 ]
机构
[1] Montefiore Med Ctr, 111 E 210 St, Bronx, NY 10467 USA
[2] Dept Gen Internal Med, New York, NY USA
[3] Albert Einstein Coll Med, New York, NY USA
来源
BMC MEDICAL RESEARCH METHODOLOGY | 2016年 / 16卷
关键词
Community based participatory research; Community advisory boards; HIV/AIDS; Academic-community partnerships; PARTICIPATORY RESEARCH; ADVISORY BOARDS; PARTNERSHIPS; PREVENTION; SITES; CARE; RACE;
D O I
10.1186/s12874-016-0181-8
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Community advisory boards (CAB) are proposed as one mechanism to carry out successful community based participatory research (CBPR), but the presence of CABs may be insufficient to optimize academic-community partnerships. Methods: We conducted semi-tructured interviews with minority members of a CAB partnered with a HIV/AIDS research center and identified three themes. Results: First, lack of trust in researchers included two subthemes: researchers' lacked respect for community-based organizations' (CBO's) interests and paid inadequate attention to building trust. Second, power imbalance included three subthemes: CAB members felt like inferior "token" members, felt that a lack of communication led to disempowerment, and held preconceived beliefs of researchers that led to perceived power imbalance. Third, CAB members suggested best practices, including using collaborations to build trust, actively allocating power, and sharing tangible research benefits with CBOs. Conclusions: Our findings indicate that CABs must be founded on trust and instilled with power to meet the tenets of CBPR.
引用
收藏
页数:9
相关论文
共 50 条
  • [21] Community-based participatory research and the challenges of qualitative analysis enacted by lay, nurse, and academic researchers
    Foster, Jennifer W.
    Chiang, Fidela
    Burgos, Rosa I.
    Caceres, Ramona E.
    Tejada, Carmen M.
    Almonte, Asela T.
    Noboa, Frank R. M.
    Perez, Lidia J.
    Urbaez, Marilin F.
    Heath, Annemarie
    RESEARCH IN NURSING & HEALTH, 2012, 35 (05) : 550 - 559
  • [22] Advancing Community-Engaged Research Methods: A Qualitative Study of Men Who Have Sex With Men Community Contributions to a Chinese HIV Stigma Study
    Luo, Danyang
    Zhang, Wei
    Meng, Siyan
    Ding, Runze
    Wu, Yumeng
    Yang, Gang
    Wei, Chongyi
    Tucker, Joseph D.
    Smith, M. Kumi
    STIGMA AND HEALTH, 2024,
  • [23] Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research
    John Barugahare
    Nancy E. Kass
    BMC Medical Ethics, 23
  • [24] The role of HIV testing, counselling, and treatment in coping with HIV/AIDS in Uganda: a qualitative analysis
    Nyanzi-Wakholi, Barbara
    Lara, Antonieta Medina
    Watera, Christine
    Munderi, Paula
    Gilks, Charles
    Grosskurth, Heiner
    AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2009, 21 (07): : 903 - 908
  • [25] Perceptions and experiences of community members on caring for preterm newborns in rural Mangochi, Malawi: a qualitative study
    Gondwe, Austrida
    Munthali, Alister C.
    Ashorn, Per
    Ashorn, Ulla
    BMC PREGNANCY AND CHILDBIRTH, 2014, 14
  • [26] Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research
    Barugahare, John
    Kass, Nancy E.
    BMC MEDICAL ETHICS, 2022, 23 (01)
  • [27] HIV awareness, pre-exposure prophylaxis perceptions and experiences among people who exchange sex: qualitative and community based participatory study
    Kislovskiy, Yasaswiz
    Erpenbeck, Sarah
    Martina, Jamie
    Judkins, Courtney
    Miller, Elizabeth
    Chang, Judy C.
    BMC PUBLIC HEALTH, 2022, 22 (01)
  • [28] Beyond the Burden: A Qualitative Inquiry into the Experiences of Chinese Informal Caregivers for People Living with HIV or AIDS
    Zhang, Ying
    Liu, Mingyuan
    Han, Jing
    Tian, Xin
    Xin, Youqing
    PATIENT PREFERENCE AND ADHERENCE, 2024, 18 : 677 - 685
  • [29] Qualitative analysis of financing HIV and AIDS program in Health Office of Jayawijaya District, Papua Province
    Resubun, Theresia Falentina
    Darmawansyah
    Amiruddin, Ridwan
    Palluturi, Sukri
    Syafar, Muhammad
    GACETA SANITARIA, 2021, 35 : S64 - S66
  • [30] Task shifting of HIV/AIDS case management to Community Health Service Centers in urban China: a qualitative policy analysis
    Fuchang Ma
    Fan Lv
    Peng Xu
    Dapeng Zhang
    Sining Meng
    Lahong Ju
    Huihui Jiang
    Liping Ma
    Jiangping Sun
    Zunyou Wu
    BMC Health Services Research, 15