Marrying into it: Siblings-in-law in the social support networks of adults with intellectual and developmental disabilities
被引:2
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作者:
Bumble, J. L.
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机构:
Univ Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Bumble, J. L.
[1
]
Sanderson, K. A.
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机构:
Calif State Univ Long Beach, Dept Adv Studies Educ & Counseling, Long Beach, CA 90840 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Sanderson, K. A.
[2
]
Zemke, K. E.
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机构:
Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Zemke, K. E.
[3
]
Hodapp, R. M.
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Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Hodapp, R. M.
[3
]
机构:
[1] Univ Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
[2] Calif State Univ Long Beach, Dept Adv Studies Educ & Counseling, Long Beach, CA 90840 USA
[3] Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USA
informal supports;
intellectual and developmental disabilities;
sibling-in-law;
social network;
social supports;
COMMUNITY PARTICIPATION;
DOWN-SYNDROME;
INDIVIDUALS;
PEOPLE;
FAMILY;
AUTISM;
MEMBER;
SCALE;
D O I:
10.1111/jir.12864
中图分类号:
G76 [特殊教育];
学科分类号:
040109 ;
摘要:
Background Although attention has been devoted to social supports provided by parents and siblings of adults with intellectual and developmental disabilities (IDD), much less is known about supports provided by the spouses of these siblings-the so-called siblings-in-law. This study examined the role of the sibling-in-law in the social support networks of their brother/sister-in-law with IDD and factors associated with providing greater amounts of tangible, informational and emotional support. Method Siblings-in-law of adults with IDD living predominately in the United States (N = 99) participated in a cross-sectional survey. Measures covered demographic and family background, perspectives towards having a brother/sister-in-law with IDD, supports provided and characteristics of the adult with IDD's social support network. Results Most siblings-in-law reported providing support to their brother/sister-in-law with IDD. Percentages of siblings-in-law providing support were similar to that of the spouse and the spouse's family in the area of emotional support and similar to percentages of paid professionals in tangible and informational supports. Across all three support types, the main predictor of increased sibling-in-law support levels was a decreased ability of the parents-in-law to care for their child with IDD. Other predictors (e.g. distance from brother/sister-in-law with IDD and disability 'insider' status) varied by support type. Conclusions Findings highlight the role of siblings-in-law in the social support networks of adults with IDD, with implications for policy and practice.
机构:
Virginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
Lineberry, Sarah
Bogenschutz, Matthew
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机构:
Partnership People Disabilities, 700 E Franklin St,1st Floor,Suite 140, Richmond, VA 23219 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
Bogenschutz, Matthew
Broda, Michael
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机构:
Partnership People Disabilities, 700 E Franklin St,1st Floor,Suite 140, Richmond, VA 23219 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
Broda, Michael
Dinora, Parthenia
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Partnership People Disabilities, 700 E Franklin St,1st Floor,Suite 140, Richmond, VA 23219 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
Dinora, Parthenia
Prohn, Seb
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Partnership People Disabilities, 700 E Franklin St,1st Floor,Suite 140, Richmond, VA 23219 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
Prohn, Seb
West, Angela
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Partnership People Disabilities, 700 E Franklin St,1st Floor,Suite 140, Richmond, VA 23219 USAVirginia Commonwealth Univ, Sch Social Work, POB 842027, Richmond, VA 23284 USA
机构:
Michigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, E Lansing, MI 48824 USAMichigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Simplican, Stacy Clifford
Leader, Geraldine
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机构:
Natl Univ Ireland, Dept Psychol, Galway, IrelandMichigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Leader, Geraldine
Kosciulek, John
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机构:
Michigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, E Lansing, MI 48824 USAMichigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Kosciulek, John
Leahy, Michael
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Michigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, E Lansing, MI 48824 USAMichigan State Univ, Hegarty Fellow Program, MSU DOCTRID Michigan State Univ Daughters Char Te, E Lansing, MI 48824 USA
机构:
Ramon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain
Vrije Univ Amsterdam Med Ctr, Amsterdam UMC, Dept Eth Law & Humanities, Amsterdam, NetherlandsRamon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain
Muries-Cantan, Olga
Gine, Climent
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Ramon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, SpainRamon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain
Gine, Climent
Brown, Roy I. I.
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机构:
Univ Calgary, Educ Psychol, Calgary, AB, Canada
Flinders Univ S Australia, Coll Educ, Adelaide, Australia
Univ Victoria, Sch Child & Youth Care, Victoria, BC, CanadaRamon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain
Brown, Roy I. I.
Baques Aguiar, Natasha
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Ramon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, SpainRamon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain
Baques Aguiar, Natasha
Schippers, Alice P.
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机构:
Univ Humanist Studies, Disabil Studies, Care Eth, Utrecht, NetherlandsRamon Llull Univ, Blanquerna Fac Psychol Educ & Sport Sci, Barcelona, Spain