Marrying into it: Siblings-in-law in the social support networks of adults with intellectual and developmental disabilities
被引:2
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作者:
Bumble, J. L.
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机构:
Univ Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Bumble, J. L.
[1
]
Sanderson, K. A.
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机构:
Calif State Univ Long Beach, Dept Adv Studies Educ & Counseling, Long Beach, CA 90840 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Sanderson, K. A.
[2
]
Zemke, K. E.
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机构:
Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Zemke, K. E.
[3
]
Hodapp, R. M.
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机构:
Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USAUniv Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
Hodapp, R. M.
[3
]
机构:
[1] Univ Missouri, Dept Educ Preparat & Leadership, St Louis, MO 63121 USA
[2] Calif State Univ Long Beach, Dept Adv Studies Educ & Counseling, Long Beach, CA 90840 USA
[3] Vanderbilt Univ, Peabody Coll, Dept Special Educ, Nashville, TN 37203 USA
informal supports;
intellectual and developmental disabilities;
sibling-in-law;
social network;
social supports;
COMMUNITY PARTICIPATION;
DOWN-SYNDROME;
INDIVIDUALS;
PEOPLE;
FAMILY;
AUTISM;
MEMBER;
SCALE;
D O I:
10.1111/jir.12864
中图分类号:
G76 [特殊教育];
学科分类号:
040109 ;
摘要:
Background Although attention has been devoted to social supports provided by parents and siblings of adults with intellectual and developmental disabilities (IDD), much less is known about supports provided by the spouses of these siblings-the so-called siblings-in-law. This study examined the role of the sibling-in-law in the social support networks of their brother/sister-in-law with IDD and factors associated with providing greater amounts of tangible, informational and emotional support. Method Siblings-in-law of adults with IDD living predominately in the United States (N = 99) participated in a cross-sectional survey. Measures covered demographic and family background, perspectives towards having a brother/sister-in-law with IDD, supports provided and characteristics of the adult with IDD's social support network. Results Most siblings-in-law reported providing support to their brother/sister-in-law with IDD. Percentages of siblings-in-law providing support were similar to that of the spouse and the spouse's family in the area of emotional support and similar to percentages of paid professionals in tangible and informational supports. Across all three support types, the main predictor of increased sibling-in-law support levels was a decreased ability of the parents-in-law to care for their child with IDD. Other predictors (e.g. distance from brother/sister-in-law with IDD and disability 'insider' status) varied by support type. Conclusions Findings highlight the role of siblings-in-law in the social support networks of adults with IDD, with implications for policy and practice.
机构:
Univ Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
Anderson, Lynda Lahti
Humphries, Kathy
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机构:
Univ Montana, Montana Disabil & Hlth Program, Rural Inst, Missoula, MT 59812 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
Humphries, Kathy
McDermott, Suzanne
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机构:
Univ S Carolina, Dept Family & Prevent Med, Columbia, SC 29208 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
McDermott, Suzanne
Marks, Beth
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机构:
Univ Illinois, Dep Disabil & Human Dev, Chicago, IL 60680 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
Marks, Beth
Sisarak, Jasmina
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机构:
Univ Illinois, Dept Disabil & Human Dev, Chicago, IL 60680 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
Sisarak, Jasmina
Larson, Sheryl
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机构:
Univ Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USAUniv Minnesota, Res & Training Ctr Community Living, Minneapolis, MN 55455 USA
机构:
Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, 620 Farm Lane, E Lansing, MI 48824 USAMichigan State Univ, Dept Counseling Educ Psychol & Special Educ, 620 Farm Lane, E Lansing, MI 48824 USA
Fisher, Marisa H.
Athamanah, Lindsay S.
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机构:
Univ Missouri, Dept Educator Preparat & Leadership, St Louis, MO 63121 USAMichigan State Univ, Dept Counseling Educ Psychol & Special Educ, 620 Farm Lane, E Lansing, MI 48824 USA
机构:
SUNY Coll Fredonia, Dept Sociol Anthropol Social Work & Criminal Just, Fredonia, NY 14063 USASUNY Coll Fredonia, Dept Sociol Anthropol Social Work & Criminal Just, Fredonia, NY 14063 USA
Ward, Rolanda L.
Nichols, Amanda D.
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机构:
Arc Massachusetts, Waltham, MA USASUNY Coll Fredonia, Dept Sociol Anthropol Social Work & Criminal Just, Fredonia, NY 14063 USA
Nichols, Amanda D.
Freedman, Ruth I.
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机构:
Boston Univ, Sch Social Work, Boston, MA 02215 USASUNY Coll Fredonia, Dept Sociol Anthropol Social Work & Criminal Just, Fredonia, NY 14063 USA