The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

被引：52

作者：

Bediako, Shawn M. ^{[1
]}

Lanzkron, Sophie ^{[2
]}

Diener-West, Marie ^{[3
]}

Onojobi, Gladys ^{[4
]}

Beach, Mary C. ^{[2
]}

Haywood, Carlton, Jr. ^{[2
]}

机构：

[1] Univ Maryland Baltimore Cty, 1000 Hilltop Circle, Baltimore, MD 21250 USA

[2] Johns Hopkins Univ, Sch Med, Baltimore, MD 21218 USA

[3] Johns Hopkins Bloomberg Sch Publ Hlth, Baltimore, MD USA

[4] Howard Univ, Washington, DC 20059 USA

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2016年 / 21卷 / 05期

关键词：

disease severity; sickle cell; stigma; utilization; QUALITY-OF-LIFE; PSYCHOMETRIC ASSESSMENT; INTERNALIZED STIGMA; ANTICIPATED STIGMA; HIV STIGMA; DISEASE; PEOPLE; DEPRESSION; ADULTS; IMPACT;

D O I：

10.1177/1359105314539530

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.

引用

页码：808 / 820

页数：13

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