Being 'at-home' on outpatient parenteral antimicrobial therapy (OPAT): a qualitative study of parents' experiences of paediatric OPAT

被引:12
作者
Carter, Bernie [1 ]
Fisher-Smith, Debra [2 ]
Porter, David [3 ]
Lane, Steven [4 ]
Peak, Matthew [5 ,6 ]
Taylor-Robinson, David [7 ]
Bracken, Louise [8 ]
Carrol, Enitan [9 ]
机构
[1] Edge Hill Univ, Fac Hlth Social Care & Med, Ormskirk L39 4QP, England
[2] Univ Liverpool, Dept Clin Infect Microbiol & Immunol, Liverpool, Merseyside, England
[3] Alder Hey Childrens NHS Fdn Trust, Dept Infect Dis, Liverpool, Merseyside, England
[4] Univ Liverpool, Biostat, Liverpool, Merseyside, England
[5] Alder Hey Childrens NHS Fdn Trust, Res & Dev, Liverpool, Merseyside, England
[6] Alder Hey Childrens NHS Fdn Trust, Cheshire & Merseyside Med Children Res Network, Liverpool, Merseyside, England
[7] Univ Liverpool, Dept Publ Hlth & Policy, Liverpool, Merseyside, England
[8] Alder Hey Childrens NHS Fdn Trust, Paediat Med Res Unit, Liverpool, Merseyside, England
[9] Univ Liverpool, Dept Clin Infect Microbiol & Immunol, Liverpool, Merseyside, England
基金
英国医学研究理事会;
关键词
ANTIBIOTIC-THERAPY; COMPLICATIONS; INFECTIONS; OUTCOMES; CHILDREN; PROGRAM;
D O I
10.1136/archdischild-2019-317629
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Objective To better understand the factors that facilitate and hinder a positive experience of paediatric outpatient parenteral antimicrobial therapy (OPAT). Design Qualitative study using semistructured interviews. Setting A dedicated paediatric consultant-led hospital-based, outreach OPAT service in England. Participants Participants were primarily parents of children who had received OPAT; one child participated. Methods Children and parents of children who received OPAT and who had participated in the survey phase of the larger study were invited to be interviewed. Results 12 parents (10 mothers and 2 fathers) of 10 children participated; one child (aged 15 years). Data analysis resulted in one meta-theme, 'At-homeness' with OPAT, this reflected the overall sense of home being a place in which the children and their parents could be where they wanted to be. Four key themes were identified that reflect the ways in which parents and children experienced being at-home on OPAT: 'Comfort, security, freedom, and control'; 'Faith, trust and confidence'; 'Explanations and communication' and 'Concerns, restrictions and inconveniences'. Conclusions Despite feeling anxious at times, parents reported that they and their children generally had a positive experience of OPAT; being at-home brought many benefits compared with in-patient care. Recommendations arising from the study include a 'whole-system' approach to discharge home that includes support related to return to school/nursery, reduction in disruptions to home-based routines, more clarity on choice and preparation for managing potential anxiety, better consideration of dose timing and enhanced preparation and information.
引用
收藏
页码:276 / +
页数:6
相关论文
共 29 条
[1]  
[Anonymous], 2018, ARCH DIS CHILDHOOD
[2]   Medicines in schools: a cross-sectional survey of children, parents, teachers and health professionals [J].
Bellis, Jennifer Ruth ;
Arnott, Janine ;
Barker, Catrin ;
Prescott, Rebecca ;
Dray, Oliver ;
Peak, Matthew ;
Bracken, Louise .
BMJ PAEDIATRICS OPEN, 2017, 1 (01)
[3]  
Bolsover Sally, 2018, Nurs Child Young People, V30, P24, DOI 10.7748/ncyp.2018.e974
[4]  
Braun V., 2006, Qualitative Research in Psychology, V3, P77, DOI [10.1191/1478088706qp063oa, DOI 10.1191/1478088706QP063OA, DOI 10.1080/10875549.2021.1929659]
[5]   Delivery, setting and outcomes of paediatric Outpatient Parenteral Antimicrobial Therapy (OPAT): a scoping review [J].
Carter, Bernie ;
Carrol, Enitan D. ;
Porter, David ;
Peak, Matthew ;
Taylor-Robinson, David ;
Fisher-Smith, Debra ;
Blake, Lucy .
BMJ OPEN, 2018, 8 (11)
[6]   Treatment of urinary tract infections among febrile young children with daily intravenous antibiotic therapy at a day treatment center [J].
Gauthier, M ;
Chevalier, I ;
Sterescu, A ;
Bergeron, S ;
Brunet, S ;
Taddeo, D .
PEDIATRICS, 2004, 114 (04) :E469-E476
[7]  
Glackin L, 2014, Ir Med J, V107, P110
[8]   Parental Management of Discharge Instructions: A Systematic Review [J].
Glick, Alexander F. ;
Farkas, Jonathan S. ;
Nicholson, Joseph ;
Dreyer, Benard P. ;
Fears, Melissa ;
Bandera, Christopher ;
Stolper, Tanya ;
Gerber, Nicole ;
Yin, H. Shonna .
PEDIATRICS, 2017, 140 (02)
[9]   Complications of outpatient parenteral antibiotic therapy in childhood [J].
Gomez, M ;
Maraqa, N ;
Alvarez, A ;
Rathore, M .
PEDIATRIC INFECTIOUS DISEASE JOURNAL, 2001, 20 (05) :541-543
[10]   Blogs Written by Families During Their Child's Hospitalization: A Thematic Narrative Analysis [J].
Jones, Carolyn W. ;
Lynn, Mary R. .
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2018, 41 :110-116