Missing from the Narrative: A Seven-Decade Scoping Review of the Inclusion of Black Autistic Women and Girls in Autism Research

被引:23
作者
Lovelace, Temple S. [1 ]
Comis, Mary P. [1 ]
Tabb, JoVonne M. [1 ]
Oshokoya, Olajumoke E. [1 ]
机构
[1] Dept Counseling Psychol & Special Educ, 412B Canevin Hall,600 Forbes Ave, Pittsburgh, PA 15219 USA
关键词
Autism; Intersectionality; Scoping review; Gender; Race; Black; Girl; Woman; DISABILITIES MONITORING NETWORK; AGED; 8; YEARS; SPECTRUM DISORDER; UNITED-STATES; RETT-SYNDROME; 11; SITES; CHILDREN; GENDER; RACE; INTERSECTIONALITY;
D O I
10.1007/s40617-021-00654-9
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
The intersectional experiences of Black autistic women and girls (BAWG) are missing from medical and educational research on autism spectrum disorder (ASD). Understanding the intersectional experiences of BAWG is important due to the rising prevalence of autism in Black children and girls (Centers for Disease Control and Prevention (CDC), 2020) and the concurrent lack of availability of culturally relevant autism-related interventions (Maenner et al., 2020; West et aL, 2016). Intersectionality is the study of the overlapping discrimination produced by systems of oppression (Collins, 2019; Crenshaw, 1989, 1991) and allows the researcher to simultaneously address race and disability in special education (Artiles, 2013). In this scoping review, the authors used the PRISMA-ScR checklist (Tricco et al., 2018) and Arskey and O'Malley's (2005) framework to investigate the degree to which autism-related research (ARR) has included the intersectional experiences of BAWG. Utilizing narrative synthesis, strengths and gaps across the current body of literature are identified in order to set new directions for intersectional ARR. Overall, the authors found that across a 77-year period, three studies foregrounded BAWG and none addressed intersectionality as measured though criteria advanced by Garcia and Ortiz (2013). These results reveal the scholarly neglect BAWG face in ARR. discourse, policy, and practice. A future agenda including research, practice, and policy priorities is identified and discussed.
引用
收藏
页码:1093 / 1105
页数:13
相关论文
共 109 条
[1]  
Adams D.L., 2016, DisCrit: Disability Studies and Critical Race Theory in Education, P131
[2]  
Annamma S., 2017, Pedagogy of Pathologization: Dis/abled Girls of Color in the School-Prison Nexus
[3]  
Annamma S.A., 2016, DISCRIT DISABILITY S, P9, DOI DOI 10.1080/13613324.2012.730511
[4]   Black Girls and School Discipline: The Complexities of Being Overrepresented and Understudied [J].
Annamma, Subini Ancy ;
Anyon, Yolanda ;
Joseph, Nicole M. ;
Farrar, Jordan ;
Greer, Eldridge ;
Downing, Barbara ;
Simmons, John .
URBAN EDUCATION, 2019, 54 (02) :211-242
[5]  
[Anonymous], 2017, The Interagency Autism Coordinating Committee is a federal advisory committee charged with monitoring and coordinating federal autism research
[6]  
APA, 2013, Diagnostic and Statistical Manual of Mental Disorders: DSM-V, V5th
[7]  
Arksey H., 2005, INT J SOC RES METHOD, V8, P19, DOI [DOI 10.1080/1364557032000119616, 10.1080/1364557032000119616, https://doi.org/10.1080/1364557032000119616]
[8]   Untangling the Racialization of Disabilities An Intersectionality Critique Across Disability Models [J].
Artiles, Alfredo J. .
DU BOIS REVIEW-SOCIAL SCIENCE RESEARCH ON RACE, 2013, 10 (02) :329-347
[9]   The ''autistic psychopathy'' in childhood [J].
Asperger, H .
ARCHIV FUR PSYCHIATRIE UND NERVENKRANKHEITEN, 1944, 117 (01) :76-136
[10]   Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014 [J].
Baio, Jon ;
Wiggins, Lisa ;
Christensen, Deborah L. ;
Maenner, Matthew J. ;
Daniels, Julie ;
Warren, Zachary ;
Kurzius-Spencer, Margaret ;
Zahorodny, Walter ;
Rosenberg, Cordelia Robinson ;
White, Tiffany ;
Durkin, Maureen S. ;
Imm, Pamela ;
Nikolaou, Loizos ;
Yeargin-Allsopp, Marshalyn ;
Lee, Li-Ching ;
Harrington, Rebecca ;
Lopez, Maya ;
Fitzgerald, Robert T. ;
Hewitt, Amy ;
Pettygrove, Sydney ;
Constantino, John N. ;
Vehorn, Alison ;
Shenouda, Josephine ;
Hall-Lande, Jennifer ;
Braun, Kim Van Naarden ;
Dowling, Nicole F. .
MMWR SURVEILLANCE SUMMARIES, 2018, 67 (06) :1-23