Young Adults on the Autism Spectrum: The Struggle for Appropriate Services

被引：55

作者：

Anderson, Connie ^{[1
]}

Butt, Catherine ^{[1
]}

机构：

[1] Towson Univ, Dept Hlth Sci, Coll Hlth Profess, CHP Deans Off, 8000 York Rd, Towson, MD 21252 USA

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2018年 / 48卷 / 11期

关键词：

Autism spectrum disorders; Grounded theory; Qualitative research; Services; Young adult outcomes; CONSTANT COMPARATIVE METHOD; DISORDER; TRANSITION; EMPLOYMENT; HEALTH;

D O I：

10.1007/s10803-018-3673-z

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

In the United States, young adults with an autism spectrum disorder (ASD) lose federally mandated supports upon leaving high school. To arrange adult services, families must prove their young adult's eligibility and find competent service providers. National-level statistics regarding receipt of appropriate adult services are discouraging, but little is known about families' lived experience with regard to services. Therefore, qualitative interviews focused on the search for and satisfaction with adult services were conducted with parents of young adults with ASD, then analyzed using the constant comparative method. Emergent themes included Bureaucracy and Fighting for Access, Staffing Issues, Program Suitability, and "Doing It Yourself." The need to improve service access and delivery is discussed, as are issues facing specific ASD subgroups.

引用

页码：3912 / 3925

页数：14

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