Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

被引：176

作者：

Frank, Lori ^{[1
]}

Forsythe, Laura ^{[1
]}

Ellis, Lauren ^{[2
,3
]}

Schrandt, Suzanne ^{[1
]}

Sheridan, Sue ^{[1
]}

Gerson, Jason ^{[1
]}

Konopka, Kristen ^{[1
]}

Daugherty, Sarah ^{[1
]}

机构：

[1] PCORI, Washington, DC 20036 USA

[2] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Policy & Management, Baltimore, MD 21205 USA

[3] Johns Hopkins Berman Inst Bioeth, Baltimore, MD 21205 USA

来源：

QUALITY OF LIFE RESEARCH | 2015年 / 24卷 / 05期

关键词：

Patient engagement; Stakeholder engagement; Patient-centered outcomes research; Comparative effectiveness research; Research funding; HEALTH-CARE; PERSPECTIVE;

D O I：

10.1007/s11136-014-0893-3

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

To provide an overview of PCORI's approach to engagement in research. The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund patient-centered comparative effectiveness research. Requirements for research funding from PCORI include meaningful engagement of patients and other stakeholders in the research. PCORI's approach to engagement in research is guided by a conceptual model of patient-centered outcomes research (PCOR), that provides a structure for understanding engagement in research. To understand and improve engagement in research PCORI is learning from awardees and other stakeholders. Those efforts are described along with PCORI's capacity building and guidance to awardees via the Engagement Rubric. PCORI's unique model of engaging patients and other stakeholders in merit review of funding applications is also described. Additional support for learning about engagement in research is provided through specific research funding and through PCORI's major infrastructure initiative, PCORnet. PCORI requires engagement of stakeholders in the research it funds. In addition PCORI engages stakeholders in activities including review of funding applications and establishment of CER research infrastructure through PCORnet. The comprehensive approach to engagement is being evaluated to help guide the field toward promising practices in research engagement.

引用

页码：1033 / 1041

页数：9

共 25 条

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