Pediatric Education Discharge Support Strategies for Newly Diagnosed Children With Cancer

被引：11

作者：

Hockenberry, Marilyn ^{[1
]}

Haugen, Maureen ^{[2
]}

Slaven, Abigail ^{[3
]}

Skeens, Micah ^{[4
]}

Patton, Lindsey ^{[5
]}

Montgomery, Kathleen ^{[6
]}

Trimble, Katherine ^{[7
]}

Coyne, Kelly ^{[2
]}

Hancock, Donna ^{[8
]}

Ahmad, Amer ^{[9
]}

Daut, Emily ^{[10
]}

Glover, Leslie ^{[10
]}

Brown, Lauren ^{[11
]}

St Pierre, Sherryann ^{[12
]}

Shay, April ^{[13
]}

Maloney, Jacqueline ^{[14
]}

Burke, Michelle ^{[15
]}

Hatch, Daniel ^{[1
]}

Arthur, Megan ^{[1
]}

机构：

[1] Duke Univ, Sch Nursing, Durham, NC USA

[2] Ann & Robert H Lurie Childrens Hosp Chicago, Chicago, IL 60611 USA

[3] Cohen Childrens Med Ctr, New Hyde Pk, NY USA

[4] Nationwide Childrens Hosp, Columbus, OH USA

[5] Childrens Hlth Syst Texas Childrens Med Ctr, Dallas, TX USA

[6] Univ Wisconsin Hlth, Amer Family Childrens Hosp, Madison, WI USA

[7] Northwestern Med Cent DuPage Hosp, Chicago, IL USA

[8] St Jude Childrens Res Hosp, Memphis, TN USA

[9] King Faisal Specialist Hosp & Res Ctr, Riyadh, Saudi Arabia

[10] Washington Univ, Sch Med, St Louis Childrens Hosp, St Louis, MO 14263 USA

[11] Levine Childrens Hosp, Charlotte, NC USA

[12] Maine Med Ctr, Barbara Bush Childrens Hosp, Portland, ME 04102 USA

[13] West Virginia Univ Med, Morgantown, WV USA

[14] St Peters Univ Hosp, New Brunswick, NJ USA

[15] Nicklaus Childrens Hosp, Miami, FL USA

来源：

CANCER NURSING | 2021年 / 44卷 / 06期

关键词：

Pediatric oncology; Nursing; Nursing research; Magnet; ACUTE LYMPHOBLASTIC-LEUKEMIA; CLINICAL-ASSESSMENT; SYMPTOM CLUSTERS; REDUCED VERSION; YOUNG-ADULTS; ADOLESCENTS; FATIGUE; SLEEP; PARENTS; PERCEPTIONS;

D O I：

10.1097/NCC.0000000000000947

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Background Discharge education practices vary among institutions and lack a standardized approach for newly diagnosed pediatric oncology patients and their parents. Objective The purpose of this American Nurses Credentialing Center-supported pediatric multisite trial was to determine the feasibility and effectiveness of 2 nurse-led Parent Education Discharge Support Strategies (PEDSS) for families with a child who is newly diagnosed with cancer. Interventions/Methods A cluster randomized clinical trial design assigned 16 Magnet-designated sites to a symptom management PEDSS intervention or parent support and coping PEDSS intervention. Outcome measures evaluated at baseline, 1, and 2 months after diagnosis include symptom experiences, parent perceptions of care, unplanned service utilization, and parent evaluation of the PEDSS interventions. Results There were 283 newly diagnosed children and their parent participating in this study. Linear mixed models revealed pain differed over time by the intervention; children in the symptom management group had a greater decrease in pain. Greater nausea and appetite disturbances were experienced by older children in both groups. Fatigue and sleep disturbance showed a significant decrease over time in both groups. The symptom management group reported significantly greater satisfaction with the PEDSS intervention. Conclusions This study is among the first to examine the effects of 2 different early-discharge planning strategies for families of a newly diagnosed child with cancer. The evidence supports a standardized discharge education strategy that can be successfully implemented across institutions. Implications for Practice Nurses play a major role in the educational preparation and discharge of newly diagnosed pediatric cancer patients and their families.

引用

页码：E520 / E530

页数：11

共 50 条

[1]

Aburn Gemma, 2014, Pediatr Nurs, V40, P243

[2] Education Given to Parents of Children Newly Diagnosed With Acute Lymphoblastic Leukemia: A Narrative Review [J].