A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder

被引:9
作者
Due, Clemence [1 ]
Goodwin Smith, Ian [2 ]
Allen, Penny [2 ]
Button, Eleanor [2 ]
Cheek, Colleen [3 ]
Quarmby, Lyndsay [4 ]
Stephens, Miranda [3 ]
Paku, Sofia [5 ]
Ferguson, Sarah [5 ]
Fordyce, Kathryn [6 ]
机构
[1] Univ Adelaide, Sch Psychol, Adelaide, SA, Australia
[2] Flinders Univ S Australia, Australian Ctr Community Serv Res, Adelaide, SA, Australia
[3] Univ Tasmania, Rural Clin Sch, Burnie, Tas, Australia
[4] Univ Tasmania, Ctr Rural Hlth, Burnie, Tas, Australia
[5] Daphne St Child Care & Specialist Early Learning, Adelaide, SA, Australia
[6] North West Tasmania Autism Specif Early Learning, Burnie, Tas, Australia
关键词
autism spectrum disorder; quality of life; parental perceptions; early intervention; multidisciplinary; social inclusion; DOUBLE ABCX MODEL; CHILDHOOD AUTISM; MENTAL-HEALTH; STRESS; MOTHERS; ASSOCIATION; FAMILIES; CARE; ADJUSTMENT; EMPLOYMENT;
D O I
10.3109/13668250.2017.1310812
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background Access to both childcare and early intervention for pre-school children with autism spectrum disorder (ASD) can be difficult for parents or carers and may impact on parental social inclusion and wellbeing. There is limited research investigating how specialist centres offering both services may impact on parental outcomes. Method Parents whose children were attending such a specialised childcare setting in two states in Australia (Tasmania and South Australia) were invited to participate in a mixed-methods study investigating quality of life (Qol), social inclusion and perceptions of the centres. Results Parents had typically low levels of QoL but reported a range of benefits from receiving services, including increased levels of community participation and increased competence and confidence in themselves as parents. Conclusions Childcare centres offering specialist multi-disciplinary early intervention and parental support are valued by parents and assist with social inclusion.
引用
收藏
页码:73 / 82
页数:10
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