Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease

被引：17

作者：

Erickson, Kern I. ^{[1
]}

Freeborn, Donna ^{[2
]}

Roper, Susanne Olsen ^{[3
]}

Mandleco, Barbara ^{[2
]}

Anderson, Ashley ^{[4
]}

Dyches, Tina ^{[5
]}

机构：

[1] Intermt Healthcare, Salt Lake City, UT USA

[2] Brigham Young Univ, Coll Nursing, Provo, UT 84602 USA

[3] Brigham Young Univ, Sch Family Life, Provo, UT 84602 USA

[4] Texas Tech Univ, Univ Med Ctr, Lubbock, TX USA

[5] Brigham Young Univ, McKay Sch Educ, Provo, UT 84602 USA

来源：

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES | 2015年 / 30卷 / 02期

关键词：

Chronic illness; Qualitative; Type; 1; diabetes; Celiac disease; Child/adolescent health; GLUTEN-FREE DIET; QUALITY-OF-LIFE; CHILDREN; ADOLESCENTS; PREVALENCE; MELLITUS; CARE; ADAPTATION; MANAGEMENT; HEALTH;

D O I：

10.1016/j.pedn.2014.09.011

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Authors of this qualitative descriptive study interviewed 30 parents concerning their experiences raising a child or adolescent with type 1 diabetes (T1D) and celiac disease (CD). Analysis revealed six themes: (a) health complications of T1D, (b) challenges of daily disease management, (c) financial concerns, (d) the young person's emotional/mental health, (e) experiences with healthcare providers, and (f) experiences with people outside the family and at school. Results suggest nurses need to be sensitive to challenges young people living with T1D and CD and their parents face, conduct ongoing assessments, and provide time during interactions to adequately address concerns. (C) 2015 Elsevier Inc. All rights reserved.

引用

页码：353 / 363

页数：11

共 68 条

[1] Clinical and metabolic effects of gluten free diet in children with type 1 diabetes and coeliac disease [J].