Palliative care in multiple sclerosis: European guideline

被引:1
作者
Solari, Alessandra [1 ,3 ]
Oliver, David [2 ]
Giordano, Andrea [3 ,4 ]
Sastre-Garriga, Jaume [5 ]
Koepke, Sascha [6 ,7 ]
Rahn, Anne C. [7 ]
Kleiter, Ingo [8 ]
Aleksovska, Katina [9 ]
Battaglia, Mario A. [10 ]
Bay, Jette [11 ]
Copetti, Massimiliano [12 ]
Drulovic, Jelena [13 ]
Kooij, Liesbeth [14 ]
Mens, John [14 ]
Meza Murillo, Edwin R. [5 ]
Milanov, Ivan [15 ]
Milo, Ron [16 ,17 ]
Pekmezovic, Tatjana [18 ]
Vosburgh, Janine [19 ]
Silber, Eli [20 ]
Veronese, Simone [21 ]
Patti, Francesco [22 ]
Voltz, Raymond [23 ,24 ,25 ]
机构
[1] Fdn IRCCS Ist Neurol C Besta, Unit Neuroepidemiol, Via Celoria 11, I-20133 Milan, Italy
[2] Univ Kent, Tizard Ctr, Canterbury, Kent, England
[3] Fdn IRCCS Ist Neurol Carlo Besta, Unit Neuroepidemiol, Milan, Italy
[4] Univ Turin, Dept Psychol, Turin, Italy
[5] Univ Autonoma Barcelona, Hosp Univ Vall dHebron, Dept Neurol Neuroimmunol, Multiple Sclerosis Ctr Catalonia Cemcat, Barcelona, Spain
[6] Univ Cologne, Inst Clin Nursing Sci, Cologne, Germany
[7] Univ Med Ctr Hamburg Eppendorf, Inst Neuroimmunol & Multiple Sclerosis, Hamburg, Germany
[8] Behandlungszentrum Kempfenhausen Multiple Skleros, Marianne Strauss Klin, Berg, Germany
[9] European Acad Neurol, Vienna, Austria
[10] Univ Siena, Dept Life Sci, Siena, Italy
[11] People MS Advisory Comm, Multiple Sclerosis Int Federat, Copenhagen, Denmark
[12] Fdn IRCCS Casa Sollievo Sofferenza, Unit Biostat, San Giovanni Rotondo, Italy
[13] Univ Belgrade, Neurol Clin, CCS, Fac Med, Belgrade, Serbia
[14] Nieuw Unicum, Zandvoort, Netherlands
[15] Med Univ Sofia, Sofia, Bulgaria
[16] Barzilai Govt Hosp, Dept Neurol, Ashqelon, Israel
[17] Ben Gurion Univ Negev, Fac Hlth Sci, Beer Sheva, Israel
[18] Univ Belgrade, Fac Med, Belgrade, Serbia
[19] Israel Multiple Sclerosis Soc, Tel Aviv, Israel
[20] Kings Coll Hosp NHS Fdn Trust, Dept Neurol, London, England
[21] FARO Charitable Fdn, Turin, Italy
[22] Univ Hosp Policlin Vittorio Emanuele, Multiple Sclerosis Ctr, Neurol Clin, Catania, Italy
[23] Univ Cologne, Fac Med, Dept Palliat Med, Cologne, Germany
[24] Univ Cologne, Univ Hosp, Cologne, Germany
[25] Univ Cologne, Fac Med, Ctr Hlth Serv Res ZVFK, Cologne, Germany
关键词
Multiple sclerosis; palliative care; clinical practice guideline; GRADE assessment; MANAGEMENT; DEATH;
D O I
10.1177/1352458520926467
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
引用
收藏
页码:1009 / 1011
页数:3
相关论文
共 9 条
  • [1] Fraser Robert, 2013, Int J MS Care, V15, P99, DOI 10.7224/1537-2073.2012-044
  • [2] Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis
    Kopke, S.
    Giordano, A.
    Veronese, S.
    Rahn, A. C.
    Kleiter, I
    Basedow-Rajwich, B.
    Fornari, A.
    Battaglia, M. A.
    Drulovic, J.
    Kooij, L.
    Koops, J.
    Mens, J.
    Murillo, E. R. Meza
    Milanov, I
    Milo, R.
    Patti, F.
    Pekmezovic, T.
    Sastre-Garriga, J.
    Vosburgh, J.
    Voltz, R.
    Bay, J.
    Oliver, D. J.
    Solari, A.
    [J]. EUROPEAN JOURNAL OF NEUROLOGY, 2019, 26 (01) : 41 - 50
  • [3] KURTZKE JF, 1983, NEUROLOGY, V33, P1444, DOI 10.1212/WNL.33.11.1444
  • [4] Practical recommendations for the process of proposing, planning and writing a neurological management guideline by EAN task forces
    Leone, M. A.
    Keindl, M.
    Schapira, A. H.
    Deuschl, G.
    Federico, A.
    [J]. EUROPEAN JOURNAL OF NEUROLOGY, 2015, 22 (12) : 1505 - 1510
  • [5] A consensus review on the development of palliative care for patients with chronic and progressive neurological disease
    Oliver, D. J.
    Borasio, G. D.
    Caraceni, A.
    de Visser, M.
    Grisold, W.
    Lorenzl, S.
    Veronese, S.
    Voltz, R.
    [J]. EUROPEAN JOURNAL OF NEUROLOGY, 2016, 23 (01) : 30 - 38
  • [6] Place of death, and its relation with underlying cause of death, in Parkinson's disease, motor neurone disease, and multiple sclerosis: A population-based study
    Sleeman, Katherine E.
    Ho, Yuen K.
    Verne, Julia
    Glickman, Myer
    Silber, Eli
    Gao, Wei
    Higginson, Irene J.
    [J]. PALLIATIVE MEDICINE, 2013, 27 (09) : 840 - 846
  • [7] Solari A, 2020, EUR J NEUROL, V27, P1510, DOI [10.1111/ene.14248, 10.1089/jpm.2020.0220]
  • [8] Opening locked doors: Integrating a palliative care approach into the management of patients with severe multiple sclerosis
    Strupp, J.
    Voltz, R.
    Golla, H.
    [J]. MULTIPLE SCLEROSIS JOURNAL, 2016, 22 (01) : 13 - 18
  • [9] Causes of death among patients with multiple sclerosis
    Sumelahti, Marja-Liisa
    Hakama, Matti
    Elovaara, Irina
    Pukkala, Eero
    [J]. MULTIPLE SCLEROSIS JOURNAL, 2010, 16 (12) : 1437 - 1442