Ethical Endgames: Broad Consent for Narrow Interests; Open Consent for Closed Minds

被引：24

作者：

Karlsen, Jan Reinert ^{[1
]}

Solbakk, Jan Helge ^{[4
,5
]}

Holm, Soren ^{[2
,3
]}

机构：

[1] Univ Bergen, Ctr Study Sci & Humanities, N-5020 Bergen, Norway

[2] Univ Manchester, Inst Med Law & Bioeth, Manchester M13 9PL, Lancs, England

[3] Univ Oslo, Fac Med, Ctr Med Eth, N-0316 Oslo, Norway

[4] Univ Oslo, Fac Med, Sect Med Eth, N-0316 Oslo, Norway

[5] Univ Bergen, Fac Med, Ctr Int Hlth, N-5020 Bergen, Norway

来源：

CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS | 2011年 / 20卷 / 04期

关键词：

INFORMED CONSENT; HUMAN GENOME; SEQUENCE;

D O I：

10.1017/S0963180111000314

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

The ongoing legal and bioethics debates on consent requirements for collecting, storing, and utilizing human biological material for purposes of basic and applied research-that is, genomic research biobanking-have already managed to pass through three ostensibly dissimilar stages © 2011 Cambridge University Press.

引用

页码：572 / 583

页数：12

共 30 条

[1]

[Anonymous], 2005, UNIVERSAL DECLARATIO

[2]

[Anonymous], 2009, IJRAM, DOI DOI 10.1504/IJRAM.2009.024130

[3] Coding and consent: Moral challenges of the database project in Iceland [J].

Arnason, V .

BIOETHICS, 2004, 18 (01) :27-49

[4] ETHICS AND CLINICAL RESEARCH [J].

BEECHER, HK .

NEW ENGLAND JOURNAL OF MEDICINE, 1966, 274 (24) :1354-&

[5] Informed consent for population-based research involving genetics [J].

Beskow, LM ;

Burke, W ;

Merz, JF ;

Barr, PA ;

Terry, S ;

Penchaszadeh, VB ;

Gostin, LO ;

Gwinn, M ;

Khoury, MJ .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2001, 286 (18) :2315-2321

[6]

Canguilhem G., 1994, VITAL RATIONALIST SE, P321

[7]

GALCHER JR, 2000, NEW ENGL J MED, V24, P1827

[8] Ethics and biobanks [J].

Hansson, M. G. .

BRITISH JOURNAL OF CANCER, 2009, 100 (01) :8-12

[9] Should donors be allowed to give broad consent to future biobank research? [J].

Hansson, MG ;

Dillner, J ;

Bartrarn, CR ;

Carlson, JA ;

Helgesson, G .

LANCET ONCOLOGY, 2006, 7 (03) :266-269

[10] Broadening consent-and diluting ethics? [J].

Hofmann, B. .

JOURNAL OF MEDICAL ETHICS, 2009, 35 (02) :125-129

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