Evaluating the effectiveness and acceptability of information and therapy guides for improving the psychosocial well-being of people with facial palsy

被引:5
作者
Hotton, M. [1 ,3 ]
Johnson, D. [1 ]
Kilcoyne, S. [1 ]
Dalton, L. [2 ]
机构
[1] Oxford Univ Hosp NHS Fdn Trust, Oxford Facial Palsy Serv, Headley Way, Oxford, England
[2] Univ Oxford, Dept Psychiat, Warneford Lane, Oxford, England
[3] John Radcliffe Hosp, Russell Cairns Unit, Level 3 West Wing, Oxford, England
关键词
Facial palsy; Psychosocial well-being; Self-help; CBT; QUALITY-OF-LIFE; HOSPITAL ANXIETY; COMMITMENT THERAPY; DEPRESSION; PARALYSIS; DISTRESS; DISFIGUREMENT; SATISFACTION; IMPAIRMENT; ACCEPTANCE;
D O I
10.1016/j.bjps.2022.04.022
中图分类号
R61 [外科手术学];
学科分类号
摘要
Objectives: Facial palsy (FP) can have a negative impact on an individual's psycho-logical and social well-being, irrespective of esthetic severity. There is a lack of psychological interventions tailored specifically for this population and individuals with FP report difficulties accessing specialist psychological treatment. This paper describes a pilot study evaluating the effectiveness, acceptability, and feasibility of information and therapy guides for this popula-tion.Design: Quasi-experimental, repeated measures design.Methods: Six separate information and therapy guides were designed, drawing on cogni-tive behavioral therapy, acceptance and commitment therapy, and social skills training ap-proaches. These were tested by 132 participants with FP, over a 4-to-6-week period. Partici-pants completed self-report measures assessing psychological well-being, social function, and appearance-related distress before and after the testing period, as well as provided feedback on the perceived effectiveness, acceptability, and feasibility of the intervention.Results: After completing an information and therapy guide, participants reported signifi-cant improvements in psychological well-being and social function, as well as improvements in appearance-related distress. Ninety percent of participants reported having found it helpful to complete a guide, while 79.7% reported feeling more able to cope with FP and 95.3% agreed that the guide had been easy to understand and use.Conclusions: Self-guided information and therapy guides are an acceptable and effective in-tervention for improving the psychosocial well-being of people with FP. They provide a low intensity, universal, and cost-effective option for supporting the psychological needs of this population.Clinical Trial Registration Number: NCT03943953 Crown Copyright (c) 2022 Published by Elsevier Ltd on behalf of British Association of Plastic, Reconstructive and Aesthetic Surgeons. All rights reserved.
引用
收藏
页码:3356 / 3364
页数:9
相关论文
共 29 条
[1]   Living With Moebius Syndrome: Adjustment, Social Competence, and Satisfaction With Life [J].
Bogart, Kathleen Rives ;
Matsumoto, David .
CLEFT PALATE-CRANIOFACIAL JOURNAL, 2010, 47 (02) :134-142
[2]   Expression of emotion and quality of life after facial nerve paralysis [J].
Coulson, SE ;
O'Dwyer, TJ ;
Adams, RD ;
Croxson, TR .
OTOLOGY & NEUROTOLOGY, 2004, 25 (06) :1014-1019
[3]   Impact of facial paralysis on patients with acoustic neuroma [J].
Cross, T ;
Sheard, CE ;
Garrud, P ;
Nikolopoulos, TP ;
O'Donoghue, GM .
LARYNGOSCOPE, 2000, 110 (09) :1539-1542
[4]   Correlations between impairment, psychological distress, disability, and quality of life in peripheral facial palsy [J].
Diaz-Aristizabal, U. ;
Valdes-Vilches, M. ;
Fernandez-Ferreras, T. R. ;
Calero-Munoz, E. ;
Bienzobas-Allue, E. ;
Moracen-Naranjo, T. .
NEUROLOGIA, 2019, 34 (07) :423-428
[5]  
Facial Palsy UK, ACCESSING HLTH CARE
[6]   A systematic review of the use of Acceptance and Commitment Therapy (ACT) in chronic disease and long-term conditions [J].
Graham, Christopher D. ;
Gouick, Joanna ;
Krahe, Charlotte ;
Gillanders, David .
CLINICAL PSYCHOLOGY REVIEW, 2016, 46 :46-58
[7]   Promoting Positive Body Image in Males and Females: Contemporary Issues and Future Directions [J].
Grogan, Sarah .
SEX ROLES, 2010, 63 (9-10) :757-765
[8]   International experiences with the hospital anxiety and depression scale - A review of validation data and clinical results [J].
Herrmann, C .
JOURNAL OF PSYCHOSOMATIC RESEARCH, 1997, 42 (01) :17-41
[9]   The Efficacy of Cognitive Behavioral Therapy: A Review of Meta-analyses [J].
Hofmann, Stefan G. ;
Asnaani, Anu ;
Vonk, Imke J. J. ;
Sawyer, Alice T. ;
Fang, Angela .
COGNITIVE THERAPY AND RESEARCH, 2012, 36 (05) :427-440
[10]   What Do Facial Expressions Convey: Feeling States, Behavioral Intentions, or Action Requests? [J].
Horstmann, Gernot .
EMOTION, 2003, 3 (02) :150-166