cerebral palsy;
clinical guidelines;
hip displacement;
hip surveillance;
QUALITY-OF-LIFE;
DISPLACEMENT;
GUIDELINES;
D O I:
10.1111/jpc.14108
中图分类号:
R72 [儿科学];
学科分类号:
100202 ;
摘要:
Aim This study aimed to explore health professionals' experiences of implementing hip surveillance for young people with cerebral palsy (CP) and to identify any barriers they encounter. Methods A cross-sectional web-based survey of health professionals supporting children with CP was conducted. Responses were analysed through mixed methods. Responses to items presented as ordinal scales were analysed using descriptive statistics, and open-ended responses through a qualitative approach to identify themes. Results A total of 32 paediatricians, 2 rehabilitation specialists and 50 physiotherapists completed the survey, with respondents working within both hospital- and community-based settings. Barriers most frequently reported were inconsistency in radiology practice and reporting (35%), parent engagement (32%), limited communication between clinicians (31%), lack of clarity in lines of responsibility (27%) and forgetting to undertake surveillance (26%). Four major themes were identified through qualitative analysis: (i) recognition of the importance of clinical guidelines to hip surveillance; (ii) the value of each role in the team around a child; (iii) the challenge of sharing responsibility; and (iv) the importance of communication in facilitating collaboration. Conclusions Barriers can be encountered at each phase of the hip surveillance process, but there are also factors that act as facilitators. Locally, the results will inform the development of an enhanced state-wide approach to hip surveillance for all children with CP. The identified barriers do not appear unique to the local context, and the findings may be transferable to other settings. Awareness of the potential barriers and facilitators would be valuable to those implementing hip surveillance in other areas.
机构:
Shriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USAShriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USA
Kulkarni, V. A.
Davids, J. R.
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机构:
Shriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USAShriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USA
Davids, J. R.
Boyles, A. D.
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机构:
Childrens Hosp Colorado, Dept Orthopaed Surg, Colorado Springs, CO USAShriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USA
Boyles, A. D.
Cung, N. Q.
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机构:
Shriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USAShriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USA
Cung, N. Q.
Bagley, A.
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机构:
Shriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USAShriners Hosp Children Northern Calif, Dept Orthopaed Surg, Sacramento, CA 95817 USA
机构:
Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA
Abousamra, Oussama
Er, Mehmet S.
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Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA
Er, Mehmet S.
Rogers, Kenneth J.
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Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA
Rogers, Kenneth J.
Nishnianidze, Tristan
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Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA
Nishnianidze, Tristan
Dabney, Kirk W.
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机构:
Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA
Dabney, Kirk W.
Miller, Freeman
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机构:
Nemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USANemours Alfred I duPont Hosp Children, Dept Orthoped, 1600 Rockland Rd, Wilmington, DE 19803 USA