Self-management for youth and young adults with special health needs: protocol for a scoping review of health care transition planning literature

被引:1
作者
Betz, Cecily L. [1 ]
Mannino, Jennifer E. [2 ]
Cleverley, Kristin [3 ]
Young, Cara C. [4 ]
Ridosh, Monique [5 ]
Kysh, Lynn [6 ]
Hudson, Sharon M. [1 ]
机构
[1] Calif State Univ Los Angeles, Keck Sch Med, Dept Pediat, Los Angeles, CA 90032 USA
[2] Barbara H Hagan Sch Nursing & Hlth Sci, Molloy Coll, Rockville Ctr, Rockville, NY USA
[3] Univ Toronto, Lawrence E Bloomberg Fac Nursing, Toronto, ON, Canada
[4] Univ Texas, Sch Nursing, Austin, TX USA
[5] Loyola Univ Chicago, Marcella Niehoff Sch Nursing, Ctr Translat Res & Educ, Chicago, IL USA
[6] Childrens Hosp Los Angeles, Los Angeles, CA 90027 USA
关键词
health care transition; self-management; transition age youth and young adults; ADOLESCENTS; INTERVENTIONS; FRAMEWORK; OUTCOMES; MODEL;
D O I
10.11124/JBIES-20-00265
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: The purpose of this scoping review is to explore the extent to which self-management of youth and young adults with special health care needs is reported in the health care transition literature. Introduction: It is essential for youth and young adults with special health care needs to learn the self-management skills, to the extent possible, that are essential in maintaining the stability of their chronic condition to seamlessly transfer to adult care and live independently. Acquisition of self-management competencies for chronic care management is an essential component of health care transition preparation. Inclusion criteria: The inclusion criteria will be based upon age and condition designation. The age range of participants will include youth and young adults, aged nine to 35 years, who have special health care needs. Inclusion criteria consists of both non-categorical and diagnostic specific terminology for youth and young adults with a childhood acquired chronic condition. Non-categorical terms used include "long-term chronic condition," "special health care needs," "medical complex condition," "complex care needs," "developmental disability," "intellectual disability," "mental health condition," "emotional disabilities," "physical disabilities," "chronic illness," and "chronic condition." Methods: The following databases will be accessed for this health care transition scoping review: CINAHL, Cochrane CENTRAL, Embase, Ovid MEDLINE, PsycINFO, and Web of Science. Relevant gray literature will be accessed as well. The Covidence software platform will be used to review citations and full-text articles. Two reviewers will independently review abstracts and full texts of studies, and extract data using the data extraction tool. Any conflicts will be resolved with a third reviewer. Review findings will be presented in tabular format and narrative synthesis based upon the scoping review objective.
引用
收藏
页码:1682 / 1690
页数:9
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