The language of sedation in end-of-life care: The ethical reasoning of care providers in three countries

被引:29
作者
Seale, Clive [1 ]
Raus, Kasper [2 ]
Bruinsma, Sophie [3 ]
van der Heide, Agnes [4 ]
Sterckx, Sigrid [5 ]
Mortier, Freddy [6 ]
Payne, Sheila [7 ]
Mathers, Nigel [8 ,9 ]
Rietjens, Judith [10 ,11 ,12 ]
机构
[1] Brunel Univ, Uxbridge UB8 3PH, Middx, England
[2] Univ Ghent, Bioeth Inst, B-9000 Ghent, Belgium
[3] Erasmus MC, Rotterdam, Netherlands
[4] Erasmus MC, Care & Decis Making End Life, Dept Publ Hlth, Univ Med Ctr, Rotterdam, Netherlands
[5] Univ Ghent, Eth, B-9000 Ghent, Belgium
[6] Univ Ghent, Eth & Viece Rector, B-9000 Ghent, Belgium
[7] Univ Lancaster, Int Observ End Life Care, Lancaster LA1 4YW, England
[8] Univ Sheffield, Primary Med Care, Sheffield S10 2TN, S Yorkshire, England
[9] Univ Sheffield, Acad Unit Primary Med Care, Sheffield S10 2TN, S Yorkshire, England
[10] Erasmus MC, Dept Publ Hlth, Rotterdam, Netherlands
[11] Univ Ghent, End Of Life Care Res Grp, B-9000 Ghent, Belgium
[12] Vrije Univ Brussel, Brussels, Belgium
来源
HEALTH | 2015年 / 19卷 / 04期
基金
英国经济与社会研究理事会;
关键词
bioethics; cancer and palliative care; death dying and bereavement; PALLIATIVE SEDATION; UNTIL DEATH; NURSES; PHYSICIANS; NETHERLANDS; EUTHANASIA; DECISIONS; UK;
D O I
10.1177/1363459314555377
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The application of ethically controversial medical procedures may differ from one place to another. Drawing on a keyword and text-mining analysis of 156 interviews with doctors and nurses involved in end-of-life care (care providers'), differences between countries in care providers' ethical rationales for the use of sedation are reported. In the United Kingdom, an emphasis on titrating doses proportionately against symptoms is more likely, maintaining consciousness where possible. The potential harms of sedation are perceived to be the potential hastening of social as well as biological death. In Belgium and the Netherlands, although there is concern to distinguish the practice from euthanasia, rapid inducement of deep unconsciousness is more acceptable to care providers. This is often perceived to be a proportionate response to unbearable suffering in a context where there is also greater pressure to hasten dying from relatives and others. This means that sedation is more likely to be organised like euthanasia, as the end moment' is reached, and family farewells are organised before the patient is made unconscious for ever. Medical and nursing practices are partly responses to factors outside the place of care, such as legislation and public sentiment. Dutch guidelines for sedation largely tally with the practices prevalent in the Netherlands and Belgium, in contrast with those produced by the more international European Association for Palliative Care whose authors describe an ethical framework closer to that reportedly used by UK care providers.
引用
收藏
页码:339 / 354
页数:16
相关论文
共 23 条
[1]  
Baker P., 2011, Key terms in discourse analysis
[2]  
Broeckaert B., 2012, GUIDELINE PALLIATIVE
[3]   Continuous Deep Sedation Until Death in Belgium: A Nationwide Survey [J].
Chambaere, Kenneth ;
Bilsen, Johan ;
Cohen, Joachim ;
Rietjens, Judith A. ;
Onwuteaka-Philipsen, Bregje D. ;
Mortier, Freddy ;
Deliens, Luc .
ARCHIVES OF INTERNAL MEDICINE, 2010, 170 (05) :490-493
[4]   European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care [J].
Cherny, Nathan I. ;
Radbruch, Lukas .
PALLIATIVE MEDICINE, 2009, 23 (07) :581-593
[5]   Palliative Sedation, Not Slow Euthanasia: A Prospective, Longitudinal Study of Sedation in Flemish Palliative Care Units [J].
Claessens, Patricia ;
Menten, Johan ;
Schotsmans, Paul ;
Broeckaert, Bert .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2011, 41 (01) :14-24
[6]   Changed Patterns in Dutch Palliative Sedation Practices After the Introduction of a National Guideline [J].
Hasselaar, Jeroen G. J. ;
Verhagen, Stans C. A. H. H. V. M. ;
Wolff, Andre P. ;
Engels, Yvonne ;
Crul, Ben J. P. ;
Vissers, Kris C. P. .
ARCHIVES OF INTERNAL MEDICINE, 2009, 169 (05) :430-437
[7]   Palliative sedation: not just normal medical practice. Ethical reflections on the Royal Dutch Medical Association's guideline on palliative sedation [J].
Janssens, Rien ;
van Delden, Johannes J. M. ;
Widdershoven, Guy A. M. .
JOURNAL OF MEDICAL ETHICS, 2012, 38 (11) :664-668
[8]   Emotional burden of nurses in palliative sedation therapy [J].
Morita, T ;
Miyashita, M ;
Kimura, R ;
Adachi, I ;
Shima, Y .
PALLIATIVE MEDICINE, 2004, 18 (06) :550-557
[9]   Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey [J].
Onwuteaka-Philipsen, Bregje D. ;
Brinkman-Stoppelenburg, Arianne ;
Penning, Corine ;
de Jong-Krul, Gwen J. F. ;
van Delden, Johannes J. M. ;
van der Heide, Agnes .
LANCET, 2012, 380 (9845) :908-915
[10]  
Payer L, 1990, MED CULTURE