Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients

被引:49
作者
Garrido-Cumbrera, Marco [1 ]
Hillmann, Ottfrid [2 ]
Mahapatra, Raj [3 ]
Trigos, David [4 ]
Zajc, Petra [5 ]
Weiss, Luisa [6 ]
Bostynets, Galya [7 ]
Gossec, Laure [8 ,9 ]
Coates, Laura C. [10 ,11 ]
机构
[1] Univ Seville, CEADE Coordinadora Espanola Asociac Pacientes Esp, Seville, Spain
[2] EUROPSO European Umbrella Org Psoriasis Movements, Almere, Netherlands
[3] ASIF, London, England
[4] Accion Psoriasis, Barcelona, Spain
[5] Slovenian Assoc Rheumat Patients, Ljubljana, Slovenia
[6] Schweizer Polyarthritiker Vereinigung, Zurich, Switzerland
[7] Russian Ankylosing Spondylitis Assoc, Moscow, Russia
[8] Paris 06 Univ, Sorbonne Univ, Paris, France
[9] Hop La Pitie Salpetriere, AP HP, Rheumatol Dept, Paris, France
[10] Univ Leeds, Leeds Inst Rheumat & Musculoskeletal Med, Leeds, W Yorkshire, England
[11] Univ Oxford, Nuffield Dept Orthopaed Rheumatol & Musculoskelet, Oxford, England
关键词
Ankylosing spondylitis; Axial spondyloarthritis; Burden of illness; Patient perspective; Psoriatic arthritis; QUALITY-OF-LIFE; ANKYLOSING-SPONDYLITIS; RHEUMATOID-ARTHRITIS; EULAR RECOMMENDATIONS; MULTINATIONAL ASSESSMENT; AMERICAN-COLLEGE; EUROPEAN LEAGUE; UNMET NEEDS; BACK-PAIN; DISEASE;
D O I
10.1007/s40744-017-0066-2
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Psoriatic arthritis (PsA) and axial spondyloarthritis (AxSpA) are both chronic, inflammatory conditions that result in a substantial burden of disease and reduced quality of life for patients. Patient involvement in developing optimal disease management strategies, including defining appropriate goals, therapies, and treatment options, as well as in setting policy priorities and agendas, is key. A working group of patient organization representatives and rheumatologists explored what patients consider to be unmet needs, important treatment gaps, and future priorities in PsA and AxSpA management. Reducing pain and fatigue, and improving physical and social functioning and work productivity were identified as important treatment goals for patients. Although the major treatment target for both PsA and AxSpA is remission, with low/minimal disease activity an alternative target for patients with established or long-standing disease, the meaning of remission from the patient's perspective needs to be explored further as it may differ considerably from the physician's perspective. Key recommendations from the working group to tackle unmet needs included reducing time to diagnosis, increasing patient and physician disease awareness, focusing on patients' priorities for treatment goals, and improving patient-physician communication. By addressing these key action points moving forward, the hope is that outcomes will continue to improve for patients with PsA and AxSpA.
引用
收藏
页码:219 / 231
页数:13
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