Ethics of Health Information Sharing and Social Relationships at End of Life in Assisted Living
被引:2
|
作者:
Cooke, Emma
论文数: 0引用数: 0
h-index: 0
机构:
Emory Univ, Atlanta, GA 30322 USAEmory Univ, Atlanta, GA 30322 USA
Cooke, Emma
[1
]
Perkins, Molly M.
论文数: 0引用数: 0
h-index: 0
机构:
Emory Univ, Atlanta, GA 30322 USA
Johns Hopkins Univ, Birmingham Atlanta VA Geriatr Res Educ & Clin Ctr, Atlanta, GA USAEmory Univ, Atlanta, GA 30322 USA
Perkins, Molly M.
[1
,2
]
Doyle, Patrick
论文数: 0引用数: 0
h-index: 0
机构:
Brightview Senior Living, Baltimore, MD USA
Emory Healthcare, Atlanta, GA USAEmory Univ, Atlanta, GA 30322 USA
Doyle, Patrick
[3
,4
]
Kinlaw, Kathy
论文数: 0引用数: 0
h-index: 0
机构:
Emory Univ, Atlanta, GA 30322 USAEmory Univ, Atlanta, GA 30322 USA
Kinlaw, Kathy
[1
]
Wack, Kevin
论文数: 0引用数: 0
h-index: 0
机构:
Emory Healthcare, Atlanta, GA USAEmory Univ, Atlanta, GA 30322 USA
Wack, Kevin
[4
]
Vandenberg, Ann E.
论文数: 0引用数: 0
h-index: 0
机构:
Emory Univ, Atlanta, GA 30322 USAEmory Univ, Atlanta, GA 30322 USA
Vandenberg, Ann E.
[1
]
机构:
[1] Emory Univ, Atlanta, GA 30322 USA
[2] Johns Hopkins Univ, Birmingham Atlanta VA Geriatr Res Educ & Clin Ctr, Atlanta, GA USA
assisted living;
end of life;
ethics;
social relationships;
qualitative methods;
MANAGEMENT;
AUTONOMY;
D O I:
10.1177/07334648211053308
中图分类号:
R4 [临床医学];
R592 [老年病学];
学科分类号:
1002 ;
100203 ;
100602 ;
摘要:
Given an observed tension between perceived privacy restrictions and meaningful social connection in assisted living (AL) and using a relational perspective, we conducted a secondary thematic analysis of health information sharing practices among residents and their care partners in one large urban AL community in metropolitan Atlanta. Data included in-depth interviews with residents (n = 26), family members (n = 20), AL staff (n = 11), and external care workers (n = 4) as well as ethnographic data from observations and informal conversations conducted with these participants and others. Findings showed that health information sharing among residents was helpful in building social relationships; barriers to this communication contributed to isolation. Inappropriate public exchange of residents' healthcare information hindered building these relationships. Negotiating privacy boundaries for health information sharing was an ongoing confusing process across the community. Based on the findings, we propose new guidelines for health information sharing and additional privacy training for residents and care partners.
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Sch Social Work, Chapel Hill, NC 27599 USAUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Zimmerman, Sheryl
Cohen, Lauren
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USAUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Cohen, Lauren
van der Steen, Jenny T.
论文数: 0引用数: 0
h-index: 0
机构:
EMGO Inst Hlth & Care Res, Dept Nursing Home Med, Amsterdam, Netherlands
EMGO Inst Hlth & Care Res, Dept Publ & Occupat Hlth, Amsterdam, NetherlandsUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
van der Steen, Jenny T.
Reed, David
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USAUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Reed, David
van Soest-Poortvliet, Mirjam C.
论文数: 0引用数: 0
h-index: 0
机构:
EMGO Inst Hlth & Care Res, Dept Nursing Home Med, Amsterdam, NetherlandsUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
van Soest-Poortvliet, Mirjam C.
Hanson, Laura C.
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Dept Med Palliat Care Program, Chapel Hill, NC 27599 USAUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Hanson, Laura C.
Sloane, Philip D.
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Dept Family Med, Chapel Hill, NC 27599 USAUniv N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
机构:
Univ S Florida, Sch Aging Studies, 4202 E Fowler Ave,MHC 1325, Tampa, FL 33620 USAUniv S Florida, Sch Aging Studies, 4202 E Fowler Ave,MHC 1325, Tampa, FL 33620 USA
Dobbs, Debra
Kaufman, Sharon
论文数: 0引用数: 0
h-index: 0
机构:
Inst Aging, Inland Empire Community Living Solut, Ontario, CA USAUniv S Florida, Sch Aging Studies, 4202 E Fowler Ave,MHC 1325, Tampa, FL 33620 USA
Kaufman, Sharon
Meng, Hongdao
论文数: 0引用数: 0
h-index: 0
机构:
Univ S Florida, Sch Aging Studies, 4202 E Fowler Ave,MHC 1325, Tampa, FL 33620 USAUniv S Florida, Sch Aging Studies, 4202 E Fowler Ave,MHC 1325, Tampa, FL 33620 USA
机构:
Univ N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Williams, Sharon Wallace
Williams, Christianna S.
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Sch Publ Hlth, Chapel Hill, NC 27599 USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Williams, Christianna S.
Zimmerman, Sheryl
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Sch Social Work, Chapel Hill, NC 27599 USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Zimmerman, Sheryl
Munn, Jean
论文数: 0引用数: 0
h-index: 0
机构:
Florida State Univ, Coll Social Work, Tallahassee, FL 32306 USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Munn, Jean
Dobbs, Debra
论文数: 0引用数: 0
h-index: 0
机构:
Univ S Florida, Sch Aging Studies, Tampa, FL USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Dobbs, Debra
Sloane, Philip D.
论文数: 0引用数: 0
h-index: 0
机构:
Univ N Carolina, Cecil G Sheps Ctr Hlth Serv Res, Chapel Hill, NC 27599 USA
Univ N Carolina, Cecil G Sheps Ctr Hlth Services Res, Dept Family Med, Chapel Hill, NC 27599 USAUniv N Carolina, Div Speech & Hearing Sci, Dept Allied Hlth Sci, Ctr Aging & Divers, Chapel Hill, NC 27599 USA
Sloane, Philip D.
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES,
2008,
63
(03):
: S171
-
S183
机构:
Off Hlth Econ, Southside 7th Floor,105 Victoria St, London SW1E 6QT, England
Univ Sheffield, Sch Hlth & Related Res, Sheffield, S Yorkshire, EnglandOff Hlth Econ, Southside 7th Floor,105 Victoria St, London SW1E 6QT, England
Shah, Koonal K.
Tsuchiya, Aki
论文数: 0引用数: 0
h-index: 0
机构:
Univ Sheffield, Sch Hlth & Related Res, Sheffield, S Yorkshire, England
Univ Sheffield, Dept Econ, Sheffield, S Yorkshire, EnglandOff Hlth Econ, Southside 7th Floor,105 Victoria St, London SW1E 6QT, England
Tsuchiya, Aki
Wailoo, Allan J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Sheffield, Sch Hlth & Related Res, Sheffield, S Yorkshire, EnglandOff Hlth Econ, Southside 7th Floor,105 Victoria St, London SW1E 6QT, England