ENERCA clinical recommendations for disease management and prevention of complications of sickle cell disease in children

被引：27

作者：

de Montalembert, Mariane ^{[1
,2
]}

Ferster, Alina ^{[3
]}

Colombatti, Raffaella ^{[4
]}

Rees, David C. ^{[5
]}

Gulbis, Beatrice ^{[6
]}

机构：

[1] Hop Necker Enfants Malad, AP HP, Serv Pediat Gen, F-75015 Paris, France

[2] Univ Paris 05, Paris, France

[3] ULB, Hop Univ Enfants Reine Fabiola, Brussels, Belgium

[4] Univ Padua, Dept Pediat, Clin Pediat Hematol Oncol, Padua, Italy

[5] Kings Coll London, Kings Coll Hosp, Sch Med, Dept Paediat Haematol, London WC2R 2LS, England

[6] ULB, Hop Erasme, Dept Clin Chem, Brussels, Belgium

来源：

AMERICAN JOURNAL OF HEMATOLOGY | 2011年 / 86卷 / 01期

关键词：

HYDROXYUREA; ANEMIA; STROKE; TRANSFUSIONS;

D O I：

10.1002/ajh.21865

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Universal neonatal screening is performed in the United States, England, the Netherlands, and several cities in Belgium, with selective screening targeted on "high-risk'' population in France (globally, one quarter of all the babies born in France are screened). Newborns diagnosed with a major sickle cell syndrome (SCD) should be referred to a designated pediatric sickle cell centre, and the parents are informed that their child has SCD; this may be in the sickle cell centre by an expert physician or in the community by an experienced nurse counsellor. The pediatric sickle cell centre should organize the care of the baby [1].

引用

页码：72 / 75

页数：4

共 29 条

[1] THE USE OF TRANSCRANIAL ULTRASONOGRAPHY TO PREDICT STROKE IN SICKLE-CELL DISEASE [J].

ADAMS, R ;

MCKIE, V ;

NICHOLS, F ;

CARL, E ;

ZHANG, DL ;

MCKIE, K ;

FIGUEROA, R ;

LITAKER, M ;

THOMPSON, W ;

HESS, D .

NEW ENGLAND JOURNAL OF MEDICINE, 1992, 326 (09) :605-610

[2]

Adams RJ, 2005, NEW ENGL J MED, V353, P2769

[3] Prevention of a first stroke by transfusions in children with sickle, cell anemia and abnormal results on transcranial Doppler ultrasonography [J].

Adams, RJ ;

McKie, VC ;

Hsu, L ;

Files, B ;

Vichinsky, E ;

Pegelow, C ;

Abboud, M ;

Gallagher, D ;

Kutlar, A ;

Nichols, FT ;

Bonds, DR ;

Brambilla, D ;

Woods, G ;

Olivieri, N ;

Driscoll, C ;

Miller, S ;

Wang, W ;

Hurlett, A ;

Scher, C ;

Berman, B ;

Carl, E ;

Jones, AM ;

Roach, ES ;

Wright, E ;

Zimmerman, RA ;

Waclawiw, M ;

Pearson, H ;

Powars, D ;

Younkin, D ;

El-Gammal, T ;

Seibert, J ;

Moye, L ;

Espeland, M ;

Murray, R ;

McKinley, R ;

McKinley, S ;

Hagner, S ;

Weiner, S ;

Estow, S ;

Yelle, M ;

Brock, K ;

Carter, E ;

Chiarucci, K ;

Debarr, M ;

Feron, P ;

Harris, S ;

Hoey, L ;

Jacques, K ;

Kuisel, L ;

Lewis, N .

NEW ENGLAND JOURNAL OF MEDICINE, 1998, 339 (01) :5-11

[4]

[Anonymous], 1987, JAMA-J AM MED ASSOC, V258, P1205

[5]

[Anonymous], 2004, COCHRANE DB SYST REV

[6] Definitions of the phenotypic manifestations of sickle cell disease [J].

Ballas, Samir K. ;

Lieff, Susan ;

Benjamin, Lennette J. ;

Dampier, Carlton D. ;

Heeney, Matthew M. ;

Hoppe, Carolyn ;

Johnson, Cage S. ;

Rogers, Zora R. ;

Smith-Whitley, Kim ;

Wang, Winfred C. ;

Telen, Marilyn J. .

AMERICAN JOURNAL OF HEMATOLOGY, 2010, 85 (01) :6-13

[7] INCENTIVE SPIROMETRY TO PREVENT ACUTE PULMONARY COMPLICATIONS IN SICKLE-CELL DISEASES [J].

BELLET, PS ;

KALINYAK, KA ;

SHUKLA, R ;

GELFAND, MJ ;

RUCKNAGEL, DL .

NEW ENGLAND JOURNAL OF MEDICINE, 1995, 333 (11) :699-703

[8] Long-term results of related myeloablative stem-cell transplantation to cure sickle cell disease [J].

Bernaudin, Francoise ;

Socie, Gerard ;

Kuentz, Mathieu ;

Chevret, Sylvie ;

Duval, Michel ;

Bertrand, Yves ;

Vannier, Jean-Pierre ;

Yakouben, Karima ;

Thuret, Isabelle ;

Bordigoni, Pierre ;

Fischer, Alain ;

Lutz, Patrick ;

Stephan, Jean-Louis ;

Dhedin, Nathalie ;

Plouvier, Emmanuel ;

Margueritte, Genevieve ;

Bories, Dominique ;

Verlhac, Suzanne ;

Esperou, Helene ;

Coic, Lena ;

Vernant, Jean-Paul ;

Gluckman, Eliane .

BLOOD, 2007, 110 (07) :2749-2756

[9] Influence of sickle cell disease and treatment with hydroxyurea on sperm parameters and fertility of human males [J].

Berthaut, Isabelle ;

Guignedoux, Geoffroy ;

Kirsch-Noir, Frederique ;

de Larouziere, Vanina ;

Ravel, Celia ;

Bachir, Dora ;

Galacteros, Frederic ;

Ancel, Pierre-Yves ;

Kunstmann, Jean-Marie ;

Levy, Laurence ;

Jouannet, Pierre ;

Girot, Robert ;

Mandelbaum, Jacqueline .

HAEMATOLOGICA-THE HEMATOLOGY JOURNAL, 2008, 93 (07) :988-993

[10] Asthma is associated with acute chest syndrome and pain in children with sickle cell anemia [J].

Boyd, Jessica H. ;

Macklin, Eric A. ;

Strunk, Robert C. ;

DeBaun, Michael R. .

BLOOD, 2006, 108 (09) :2923-2927

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