Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

被引:7
|
作者
Hirsch, Jameson K. [1 ]
Toussaint, Loren [2 ]
Offenbaecher, Martin [3 ]
Kohls, Niko [4 ]
Hanshans, Christian [5 ]
Vallejo, Miguel [6 ]
Rivera, Javier [7 ]
Sirois, Fuschia [8 ]
Untner, Johannes [3 ]
Hoelzl, Bertram [9 ]
Gaisberger, Martin [10 ]
Ndosi, Mwidimi [11 ]
机构
[1] East Tennessee State Univ, Dept Psychol, 420 Rogers Stout Hall, Johnson City, TN 37614 USA
[2] Luther Coll, Dept Psychol, Decorah, IA USA
[3] Gastein Healing Gallery, Bockstein, Austria
[4] Univ Appl Sci, Dept Integrat Hlth Promot, Coburg, Germany
[5] Univ Appl Sci, Dept Appl Sci & Mechatron, Munich, Germany
[6] Natl Distance Educ Univ, Dept Psychol, Madrid, Spain
[7] Hosp Gen Univ Gregorio Maranon, Madrid, Spain
[8] Univ Sheffield, Dept Psychol, Sheffield, S Yorkshire, England
[9] St Veit Hosp, St Veit, Austria
[10] Paracelsus Med Univ, Inst Physiol & Pathophysiol, Salzburg, Austria
[11] Univ West England, Dept Nursing & Midwifery, Bristol, Avon, England
关键词
ankylosing spondylitis; educational needs; fibromyalgia; rheumatic and musculoskeletal diseases; rheumatoid arthritis; QUALITY-OF-LIFE; ANKYLOSING-SPONDYLITIS; FIBROMYALGIA SYNDROME; ASSESSMENT-TOOL; ARTHRITIS; OSTEOARTHRITIS; PEOPLE; IMPACT; CARE;
D O I
10.1002/msc.1474
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted groups to provide tailored educational interventions. The aim of our study was to assess educational needs of a large cohort of patients with different rheumatic and musculoskeletal diseases attending a health facility in Austria. Methods We assessed educational needs, via an online survey of patients with fibromyalgia (FMS), rheumatoid arthritis (RA), and ankylosing spondylitis (AS) recruited from an Austrian health-care facility, using the Austrian version of the Educational Needs Assessment Tool (OENAT). Results For our sample of 603 patients, AS (62%), RA (15%), and FMS (24%), there were no educational need differences for the domains of movements, disease process, and self-help measures. Patients with FMS had less need for pain management education and greater need for education about feelings, than other disease groups. Patients with RA had a greater need for education related to treatments than other groups, and patients with AS had a greater need for treatment education than patients with FMS. Patients with AS reported greater need for support system education than other patient groups. Conclusion Educational needs vary by disease groups, suggesting that health-care professionals should assess disease-specific needs for education to provide optimal assistance in disease management for patients.
引用
收藏
页码:391 / 396
页数:6
相关论文
共 50 条
  • [41] Experiences and Preferences of Patients with Rheumatic Diseases Regarding an Interactive Health Communication Application
    van der Vaart, R.
    Drossaert, C. H. C.
    Taal, E.
    van de Laar, M. A. F. J.
    SECOND INTERNATIONAL CONFERENCE ON EHEALTH, TELEMEDICINE, AND SOCIAL MEDICINE: ETELEMED 2010, PROCEEDINGS, 2010, : 64 - 71
  • [42] Functionality assessment in patients with rheumatic diseases undergoing treatment in the Public Health System
    Barbosa de Souza, Elisa Neide
    Ribeiro da Silva, Michael Ruberson
    Ribeiro Dos Santos, Jessica Barreto
    Reis, Edna Afonso
    Alvares-Teodoro, Juliana
    Acurcio, Francisco de Assis
    Almeida, Alessandra Maciel
    EINSTEIN-SAO PAULO, 2022, 20 : eAO6453
  • [43] Nursing interventions for patients with rheumatic and musculoskeletal diseases on biological therapies: a systematic literature review
    Maria Ramona Melis
    Khadija El Aoufy
    Stefano Bambi
    Cosimo Bruni
    Serena Guiducci
    Silvia Bellando-Randone
    Marco Matucci-Cerinic
    Laura Rasero
    Clinical Rheumatology, 2023, 42 : 1521 - 1535
  • [44] Facilitators and barriers for vaccination in patients with inflammatory rheumatic musculoskeletal diseases: a prospective cohort study
    Andreica, Ioana
    Roman, Iulia
    Redeker, Imke
    Baraliakos, Xenofon
    Braun, Juergen
    Kiltz, Uta
    RMD OPEN, 2023, 9 (02):
  • [45] Treat to participation. Position paper of the German Society for Rheumatology on sustained improvement of functional health of patients with rheumatic and musculoskeletal diseases
    Mau, W.
    Beyer, W.
    Ehlebracht-Koenig, I.
    Engel, J. -M.
    Genth, E.
    Lange, U.
    ZEITSCHRIFT FUR RHEUMATOLOGIE, 2015, 74 (06): : 553 - 557
  • [46] Follow-up care and adherence to self-management activities in rehabilitation for patients with rheumatic and musculoskeletal diseases: results from a multicentre cohort study
    Valaas, Helene Lindtvedt
    Klokkerud, Mari
    Hildeskar, Julie
    Hagland, Anne S.
    Kjonli, Egil
    Mjosund, Kristin
    Oie, Lars
    Wigers, Sigrid H.
    Eppeland, Siv G.
    Hoystad, Turid O.
    Klokkeide, Ase
    Larsen, Mona
    Kjeken, Ingvild
    DISABILITY AND REHABILITATION, 2022, 44 (25) : 8001 - 8010
  • [47] What Do Patients Want? A Needs Assessment of Vulvodynia Patients Attending a Vulvar Diseases Clinic
    LePage, Katherine
    Selk, Amanda
    SEXUAL MEDICINE, 2016, 4 (04) : E242 - E248
  • [48] Trends for opioid prescribing and the impact of the COVID-19 pandemic in patients with rheumatic and musculoskeletal diseases between 2006 and 2021
    Huang, Yun-Ting
    Jenkins, David A.
    Yimer, Belay Birlie
    Benitez-Aurioles, Jose
    Peek, Niels
    Lunt, Mark
    Dixon, William G.
    Jani, Meghna
    RHEUMATOLOGY, 2024, 63 (04) : 1093 - 1103
  • [49] A cross-sectional study of vitamin D levels in a large cohort of patients with rheumatic diseases
    Nikiphorou, Elena
    Uksila, Jaakko
    Sokka, Tuulikki
    CLINICAL RHEUMATOLOGY, 2018, 37 (03) : 803 - 810
  • [50] Unmet Needs and Pro-health Behavior in Patients with Chronic Respiratory Diseases
    Duda-Sikula, M.
    Mroczek, B.
    Szewczyk, A.
    Kurpas, D.
    PULMONARY HEALTH AND DISORDERS, 2019, 1150 : 69 - 76