Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

被引:7
|
作者
Hirsch, Jameson K. [1 ]
Toussaint, Loren [2 ]
Offenbaecher, Martin [3 ]
Kohls, Niko [4 ]
Hanshans, Christian [5 ]
Vallejo, Miguel [6 ]
Rivera, Javier [7 ]
Sirois, Fuschia [8 ]
Untner, Johannes [3 ]
Hoelzl, Bertram [9 ]
Gaisberger, Martin [10 ]
Ndosi, Mwidimi [11 ]
机构
[1] East Tennessee State Univ, Dept Psychol, 420 Rogers Stout Hall, Johnson City, TN 37614 USA
[2] Luther Coll, Dept Psychol, Decorah, IA USA
[3] Gastein Healing Gallery, Bockstein, Austria
[4] Univ Appl Sci, Dept Integrat Hlth Promot, Coburg, Germany
[5] Univ Appl Sci, Dept Appl Sci & Mechatron, Munich, Germany
[6] Natl Distance Educ Univ, Dept Psychol, Madrid, Spain
[7] Hosp Gen Univ Gregorio Maranon, Madrid, Spain
[8] Univ Sheffield, Dept Psychol, Sheffield, S Yorkshire, England
[9] St Veit Hosp, St Veit, Austria
[10] Paracelsus Med Univ, Inst Physiol & Pathophysiol, Salzburg, Austria
[11] Univ West England, Dept Nursing & Midwifery, Bristol, Avon, England
关键词
ankylosing spondylitis; educational needs; fibromyalgia; rheumatic and musculoskeletal diseases; rheumatoid arthritis; QUALITY-OF-LIFE; ANKYLOSING-SPONDYLITIS; FIBROMYALGIA SYNDROME; ASSESSMENT-TOOL; ARTHRITIS; OSTEOARTHRITIS; PEOPLE; IMPACT; CARE;
D O I
10.1002/msc.1474
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted groups to provide tailored educational interventions. The aim of our study was to assess educational needs of a large cohort of patients with different rheumatic and musculoskeletal diseases attending a health facility in Austria. Methods We assessed educational needs, via an online survey of patients with fibromyalgia (FMS), rheumatoid arthritis (RA), and ankylosing spondylitis (AS) recruited from an Austrian health-care facility, using the Austrian version of the Educational Needs Assessment Tool (OENAT). Results For our sample of 603 patients, AS (62%), RA (15%), and FMS (24%), there were no educational need differences for the domains of movements, disease process, and self-help measures. Patients with FMS had less need for pain management education and greater need for education about feelings, than other disease groups. Patients with RA had a greater need for education related to treatments than other groups, and patients with AS had a greater need for treatment education than patients with FMS. Patients with AS reported greater need for support system education than other patient groups. Conclusion Educational needs vary by disease groups, suggesting that health-care professionals should assess disease-specific needs for education to provide optimal assistance in disease management for patients.
引用
收藏
页码:391 / 396
页数:6
相关论文
共 50 条
  • [1] Health-related quality of life in patients with common rheumatic diseases referred to a university clinic
    Laas, Karin
    Roine, Risto
    Rasanen, Pirjo
    Sintonen, Harri
    Leirisalo-Repo, Marjatta
    RHEUMATOLOGY INTERNATIONAL, 2009, 29 (03) : 267 - 273
  • [2] Rehabilitation of patients with inflammatory rheumatic diseases and comorbidities: unmet needs
    Fedorchenko, Yuliya
    Mahmudov, Khaiyom
    Abenov, Zhumabek
    Zimba, Olena
    Yessirkepov, Marlen
    RHEUMATOLOGY INTERNATIONAL, 2024, 44 (04) : 583 - 591
  • [3] Fatigue in patients with rheumatic and musculoskeletal diseases: a scoping review on definitions, measurement instruments, determinants, consequences and interventions
    Beckers, Esther
    Hermans, Kasper
    Van Tubergen, Astrid
    Boonen, Annelies
    RMD OPEN, 2023, 9 (03):
  • [4] Sarcopenia in patients with rheumatic musculoskeletal diseases
    Hanaoka, Hironari
    Kikuchi, Jun
    Hiramoto, Kazuoto
    Akiyama, Mitsuhiro
    Saito, Shutaro
    Kondo, Yasushi
    Kaneko, Yuko
    INTERNATIONAL JOURNAL OF RHEUMATIC DISEASES, 2023, 26 (10) : 2007 - 2013
  • [5] The EULAR points to consider for health professionals undertaking musculoskeletal ultrasound for rheumatic and musculoskeletal diseases
    Siddle, Heidi J.
    Mandl, Peter
    Aletaha, Daniel
    Vlieland, Thea P. Vliet
    Backhaus, Marina
    Cornell, Patricia
    D'Agostino, Maria-Antonietta
    Ellegaard, Karen
    Iagnocco, Annamaria
    Jakobsen, Bente
    Jasinski, Tiina
    Kildal, Nina H.
    Lehner, Michaela
    Moller, Ingrid
    Supp, Gabriela M.
    O'Connor, Philip
    Redmond, Anthony C.
    Naredo, Esperanza
    Wakefield, Richard J.
    ANNALS OF THE RHEUMATIC DISEASES, 2018, 77 (02) : 311 - 313
  • [6] Rehabilitation goals described by patients with rheumatic and musculoskeletal diseases: content and attainment during the first year after rehabilitation
    Valaas, Helene Lindtvedt
    Klokkerud, Mari
    Hildeskar, Julie
    Hagland, Anne S.
    Kjonli, Egil
    Mjosund, Kristin
    Oie, Lars
    Wigers, Sigrid H.
    Eppeland, Siv G.
    Hoystad, Turid O.
    Klokkeide, Ase
    Larsen, Mona
    Kjeken, Ingvild
    DISABILITY AND REHABILITATION, 2022, 44 (25) : 7947 - 7957
  • [7] Prevalence of Disability in Patients With Musculoskeletal Pain and Rheumatic Diseases in a Population From Cuenca, Ecuador
    Vicente Guevara-Pacheco, Sergio
    Feican-Alvarado, Astrid
    Delgado-Pauta, Jorge
    Lliguisaca-Segarra, Angelita
    Pelaez-Ballestas, Ingris
    JCR-JOURNAL OF CLINICAL RHEUMATOLOGY, 2017, 23 (06) : 324 - 329
  • [8] Mobile Health Apps for Self-Management of Rheumatic and Musculoskeletal Diseases: Systematic Literature Review
    Najm, Aurelie
    Gossec, Laure
    Weill, Catherine
    Benoist, David
    Berenbaum, Francis
    Nikiphorou, Elena
    JMIR MHEALTH AND UHEALTH, 2019, 7 (11):
  • [9] Needs, Experiences, and Views of People With Rheumatic and Musculoskeletal Diseases on Self-Management Mobile Health Apps: Mixed Methods Study
    Najm, Aurelie
    Lempp, Heidi
    Gossec, Laure
    Berenbaum, Francis
    Nikiphorou, Elena
    JMIR MHEALTH AND UHEALTH, 2020, 8 (04):
  • [10] Depression, anxiety, and quality of life in a large cohort of patients with rheumatic diseases: common, yet undertreated
    Anyfanti, Panagiota
    Gavriilaki, Eleni
    Pyrpasopoulou, Athina
    Triantafyllou, George
    Triantafyllou, Areti
    Chatzimichailidou, Sofia
    Gkaliagkousi, Eugenia
    Aslanidis, Spyros
    Douma, Stella
    CLINICAL RHEUMATOLOGY, 2016, 35 (03) : 733 - 739