Information needs and preferences among rural cancer survivors in Queensland, Australia: a qualitative examination

被引:12
作者
Crawford-Williams, Fiona [1 ,2 ]
Goodwin, Belinda C. [1 ,2 ]
Chambers, Suzanne K. [1 ,3 ]
Aitken, Joanne F. [2 ,4 ]
Ford, Martelle [1 ]
Dunn, Jeff [1 ,5 ]
机构
[1] Univ Southern Queensland, Springfield Cent, Qld, Australia
[2] Canc Council Queensland, Brisbane, Qld, Australia
[3] Univ Technol Sydney, Fac Hlth, Ultimo, NSW, Australia
[4] Univ Queensland, Sch Publ Hlth, St Lucia, Qld, Australia
[5] Prostate Canc Fdn Australia, Sydney, NSW, Australia
关键词
oncology; health information; rural health; cancer survivorship; qualitative; CARE; SOCIETY; LIFE; GAPS;
D O I
10.1111/1753-6405.13163
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objective: This study aimed to understand how cancer survivors in rural Queensland seek and receive information, as well as their preferences regarding the content and delivery of health-related information. Methods: This study explored cancer survivors' experiences in seeking and comprehending health information using a qualitative descriptive approach. Semi-structured interviews were conducted with 24 participants. Data were analysed using reflexive thematic analysis. Results: Two major themes and six sub-themes were identified including 1) information content and gaps - a) information about diagnosis and treatment, b) survivorship information gaps and c) practical support needs and 2) delivery and acceptance of information - a) sources of information, b) personalised information needs and c) information seeking or avoidance. Findings suggested that health information provision was inconsistent; survivors' attitudes towards seeking information varied greatly; and survivors' had difficulty processing information due to emotional distress. Conclusion: The role of the health professional is critical in providing information and support to rural cancer survivors. Information provided should be tailored to meet the needs and preferences of individuals taking into consideration demographic factors and attitudes. Implications for public health: The current findings imply that quality information provision after cancer treatment would facilitate improvements in satisfaction among rural cancer survivors.
引用
收藏
页码:81 / 86
页数:6
相关论文
共 49 条
[1]   Breast cancer survivorship in rural settings: a systematic review [J].
Anbari, Allison Brandt ;
Wanchai, Ausanee ;
Graves, Rebecca .
SUPPORTIVE CARE IN CANCER, 2020, 28 (08) :3517-3531
[2]  
Australian Bureau of Statistics, 2011, 1270055006 AUSTR STA
[3]  
Australian Institute of Health and Welfare, 2018, AUSTR HLTH 2018
[4]  
Australian Institute of Health and Welfare, 2017, NAT DRUG STRAT HOUS
[5]   Awareness, experiences and perceptions of telehealth in a rural Queensland community [J].
Bradford, Natalie K. ;
Caffery, Liam J. ;
Smith, Anthony C. .
BMC HEALTH SERVICES RESEARCH, 2015, 15
[6]  
Braun V., 2006, Qual. Res. Psychol, V3, P77, DOI DOI 10.1191/1478088706QP063OA
[7]   Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review [J].
Butow, Phyllis N. ;
Phillips, Fiona ;
Schweder, Janine ;
White, Kate ;
Underhill, Craig ;
Goldstein, David .
SUPPORTIVE CARE IN CANCER, 2012, 20 (01) :1-22
[8]  
Cancer Australia, 2017, PRINCIPLES CANC SURV
[9]   Building Capacity in Cancer Nurses to Deliver Self-management Support: A Call for Action Paper [J].
Chan, Raymond Javan ;
Mayer, Deborah K. ;
Koczwara, Bogda ;
Loerzel, Victoria ;
Charalambous, Andreas ;
Agbejule, Oluwaseyifunmi Andi ;
Howell, Doris .
CANCER NURSING, 2020, 43 (05) :341-342
[10]  
DAVIS S, 2020, J CANCER EDUC