Public Advocacy and Community Engagement: Interventions for Individuals with Young-Onset Dementia and Their Families

Individuals and families affected by young-onset dementia (YOD) deal with multiple difficulties related to the altered timing of the dementias. These individuals and families are overlooked by the health care and social support systems because there are few tailored services/policies for younger people affected by dementia. This article suggests how public advocacy and interventions at the clinical and community levels can support people living with YOD, in particular the spouses, who provide most of the care.