共 38 条
- [1] [Anonymous], 2019, ALS NEWS
- [2] [Anonymous], 2020, STRATEGIC PLAN
- [4] Dispelling myths about rare disease registry system development [J]. SOURCE CODE FOR BIOLOGY AND MEDICINE, 2013, 8 (01):
- [6] Comet Initiative, Core outcome measures in effectiveness trials
- [7] COSMIN, COSMIN IN
- [8] Critical Path Institute, 2019, FUND FDA C PATH NORD
- [10] The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks [J]. ORPHANET JOURNAL OF RARE DISEASES, 2016, 11