Quality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung's disease: a review

被引：80

作者：

Hartman, E. E. ^{[1
]}

Oort, F. J. ^{[2
]}

Aronson, D. C. ^{[3
]}

Sprangers, M. A. ^{[2
]}

机构：

[1] Tilburg Univ, NL-5000 LE Tilburg, Netherlands

[2] Univ Amsterdam, Amsterdam, Netherlands

[3] Univ Nijmegen Hosp, Dept Pediat Surg, NL-6500 HB Nijmegen, Netherlands

来源：

ARCHIVES OF DISEASE IN CHILDHOOD | 2011年 / 96卷 / 04期

关键词：

IMPERFORATE ANUS; ADULT PATIENTS; FOLLOW-UP; PSYCHOSOCIAL ADJUSTMENT; FECAL INCONTINENCE; MENTAL-HEALTH; EXPLAINING CHANGE; BOWEL FUNCTION; CHILDREN; ADOLESCENTS;

D O I：

10.1136/adc.2007.118133

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

The objective of this review was to examine disease-specific functioning (ie, faecal functioning and disease-related psychosocial problems) and quality of life (QoL) in patients with anorectal malformations (ARMs) or Hirschsprung's disease across different developmental stages. A search on PubMed yielded 22 eligible studies which were analysed. Patients with ARM or Hirschsprung's disease report slightly more QoL problems than comparison groups. As compared with adolescents, children reported better QoL but worse disease-specific functioning. Relationships between disease-specific functioning and QoL remain unclear. Therefore, to disentangle the complex relationship between the faecal functioning of these patients and their QoL through childhood, adolescence and adulthood, longitudinal studies should examine disease-specific functioning with validated QoL questionnaires that include age-specific versions.

引用

页码：398 / 406

页数：9

共 52 条

[11] Validation of the Baylor Continence Scale in children with anorectal malformations [J].