Love, joy and necessity-A phenomenological study of food and meals in adolescents and young adults with cancer receiving high-emetogenic chemotherapy

被引:0
作者
Christensen, Marie Ernst [1 ,2 ]
Haahr, Anita [1 ,2 ]
Olsen, Pia Riis [3 ]
Rose, Hanne Krogh [3 ]
Norlyk, Annelise [1 ,4 ]
机构
[1] Aarhus Univ, Dept Publ Hlth, Res Unit Nursing & Hlth Care, Bartholins Alle 2, DK-8000 Aarhus C, Denmark
[2] VIA Univ Coll, Res Ctr Rehabil, Hedeager 2, DK-8200 Aarhus N, Denmark
[3] Aarhus Univ Hosp, Dept Oncol, Palle Jull Jensens Blvd 99, DK-8200 Aarhus N, Denmark
[4] Univ Agder, Fac Hlth & Sport Sci, Dept Hlth & Nursing Sci, Grimstad, Norway
关键词
Adolescents; Cancer; Health professionals; High-emetogenic chemotherapy; Lack of appetite; Meals; Nausea; Next-of-kin; Participant observation; Young adults; WEIGHT-LOSS; EXPERIENCES; TASTE; PERCEPTIONS; CHILDRENS; SURVIVAL; NAUSEA; SMELL; LIFE;
D O I
10.1016/j.ejon.2021.102020
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose: This study explored how the phenomenon of meals appeared in the interrelationship between adolescents and young adults (AYAs) receiving high-emetogenic chemotherapy, their next of kin and health professionals in the clinical setting. Method: Data were collected by 140 h of participant observation conducted to gain insights into the nature of how meals appeared in the interrelationship between 12 AYAs (age 15-29 years), their next-of-kin and health professionals. The AYAs were patients with oncological and haematological diseases recruited from three university hospital departments. Data analysis was guided by van Manen's hermeneutic-phenomenological approach. Results: The essential meaning of the phenomenon may be characterized by the overarching theme; 'Seeking the joy of meals in the shadow of treatment' and the following three themes: 'Meals as a necessary evil' (AYAs); 'Meals as a matter of love' (next-of-kin); and 'Meals in the shadow of medical treatment' (health professionals). Conclusions: Meals is a multi-facetted and complex phenomenon that has different meanings to AYAs, next-of-kin and health professionals. To the AYAs, meals emerged as a necessary evil in connection with which urges to eat occurred as glimpses of desire. Prominent feelings of powerlessness and food as love were highlighted by the next-of-kin, whereas food and meals appeared secondary to treatment for health professionals, reflecting the traditional biomedical paradigm. The findings revealed that adopting a holistic approach to AYAs concerning meals can have the potential to increase their food intake.
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页数:7
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