The Use of Telehealth to Enhance Care in ALS and other Neuromuscular Disorders

被引:38
作者
Haulman, Anne [1 ]
Geronimo, Andrew [2 ]
Chahwala, Amit [3 ]
Simmons, Zachary [1 ]
机构
[1] Penn State Hlth Milton S Hershey Med Ctr, Dept Neurol, 500 Univ Dr, Hershey, PA 17033 USA
[2] Penn State Hlth Milton S Hershey Med Ctr, Dept Neurosurg, Hershey, PA USA
[3] Penn State Hlth Milton S Hershey Med Ctr, Dept Virtual Hlth, Hershey, PA USA
基金
美国国家卫生研究院;
关键词
ALS; mHealth; mobile health; telehealth; telemedicine; QUALITY-OF-LIFE; MULTIDISCIPLINARY ALS; AMERICAN ACADEMY; TELEMEDICINE; SURVIVAL; STROKE; SUBCOMMITTEE; VENTILATION; IMPROVEMENT; EXPERIENCE;
D O I
10.1002/mus.26838
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Telehealth has the potential to improve the efficiency of healthcare while reducing the burden on patients and caregivers. Encounters can be synchronous or asynchronous. When used for care of those with amyotrophic lateral sclerosis (ALS) by individual health care providers or by a multidisciplinary team, synchronous telehealth is feasible, acceptable, may produce outcomes comparable to those of in-person care, and is cost effective. Individuals with ALS who use telehealth tend to have lower physical and respiratory function and to live farther from an ALS clinic than those who exclusively attend in-person clinic visits. Asynchronous telehealth can be used as a substitute full multidisciplinary visits, or for remote monitoring of pulmonary function, gait/falls, and speech. Barriers to implementing telehealth on a wider scale include disparities in access to technology and challenges surrounding medical licensure and billing, but these are being addressed.
引用
收藏
页码:682 / 691
页数:10
相关论文
共 43 条
[1]   Impact of Telemedicine Implementation in Thrombolytic Use for Acute Ischemic Stroke: The University of Pittsburgh Medical Center Telestroke Network Experience [J].
Amorim, Edilberto ;
Shih, Min-Mei ;
Koehler, Steven A. ;
Massaro, Lori L. ;
Zaidi, Syed F. ;
Jumaa, Mouhammad A. ;
Reddy, Vivek K. ;
Hammer, Maxim D. ;
Jovin, Tudor G. ;
Wechsler, Lawrence R. .
JOURNAL OF STROKE & CEREBROVASCULAR DISEASES, 2013, 22 (04) :527-531
[2]   The natural history of motor neuron disease: Assessing the impact of specialist care [J].
Aridegbe, Tomi ;
Kandler, Rosalind ;
Walters, Stephen J. ;
Walsh, Theresa ;
Shaw, Pamela J. ;
McDermott, Christopher J. .
AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2013, 14 (01) :13-19
[3]   Video consultations in medication overuse headache. A randomized controlled trial [J].
Bekkelund, Svein, I ;
Mueller, Kai, I .
BRAIN AND BEHAVIOR, 2019, 9 (07)
[4]   Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis [J].
Bourke, SC ;
Tomlinson, M ;
Williams, TL ;
Bullock, RE ;
Shaw, PJ ;
Gibson, GJ .
LANCET NEUROLOGY, 2006, 5 (02) :140-147
[5]  
Brooks BR, 2007, ANN NEUROL, V62, pS23
[6]   Longitudinal effects of noninvasive positive-pressure ventilation in patients with amyotrophic lateral sclerosis [J].
Butz, M ;
Wollinsky, KH ;
Wiedemuth-Catrinescu, U ;
Sperfeld, A ;
Winter, S ;
Mehrkens, HH ;
Ludolph, AC ;
Schreiber, H .
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 2003, 82 (08) :597-604
[7]   Positive effects of tertiary centres for amyotrophic lateral sclerosis on outcome and use of hospital facilities [J].
Chiò, A. ;
Bottacchi, E. ;
Buffa, C. ;
Mutani, R. ;
Mora, G. .
JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2006, 77 (08) :948-950
[8]   Exploring the Parkinson patients' perspective on home-based video recording for movement analysis: a qualitative study [J].
de Vries, N. M. ;
Smilowska, K. ;
Hummelink, J. ;
Abramiuc, B. ;
van Gilst, M. M. ;
Bloem, B. R. ;
de With, P. H. N. ;
Overeem, S. .
BMC NEUROLOGY, 2019, 19 (1)
[9]   A randomized trial of telemedicine for migraine management [J].
Friedman, Deborah, I ;
Rajan, Balaraman ;
Seidmann, Abraham .
CEPHALALGIA, 2019, 39 (12) :1577-1585
[10]   Evaluation of remote pulmonary function testing in motor neuron disease [J].
Geronimo, Andrew ;
Simmons, Zachary .
AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2019, 20 (5-6) :348-355