Disclosure of Cancer Diagnosis: an Individualized and Non-paternalistic Approach Is Preferred

被引:3
作者
Al Qadire, Mohammad [1 ]
机构
[1] Al Al Bayt Univ, Adult Healthcare Nursing Dept, Princess Salma Fac Nursing, POB 130040, Mafraq 25113, Jordan
关键词
Jordan; Public; Cancer; Diagnosis; Truth-telling; Disclosure; Ethics; INFORMATION NEEDS; DECISION-MAKING; ATTITUDES; PERCEPTIONS; PREFERENCES; TELL;
D O I
10.1007/s13187-017-1192-9
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
There is no consensus among healthcare providers on a unified disclosure practice with regard to cancer diagnosis, whether to tell or not. This issue is complicated by the absence of a clear policy for healthcare practitioners, who face this dilemma every day in their clinical practice. This study uniquely aims to explore Jordanian public preference on cancer diagnosis disclosure and the type of information they need. A descriptive cross-sectional survey design was used in this study. The sample consisted of 485 participants who were conveniently selected from the Jordanian public, and data was collected using the Arabic-Cancer Patients Information Needs Questionnaire. The majority of participants were females (56.1%) and most of them (62.1%) were aged between 18 and 29years. It was found that 421 (86.8%) participants wanted to be informed of the diagnosis if they developed cancer. Participants show high needs of information with mean of total score of 4.2 SD 0.7 out of 5. They mainly demanded to know the things that participants could do to help their cure (mean=4.47, SD 0.77). Also, they wanted to know whether their cancer was under control or not (item no. 4, mean=4.42, SD 0.81). This study marks a point of change in public thinking about health issues. Jordanian public preferred to be fully informed of their cancer diagnosis. They wanted information about their prognosis, treatment and the available supportive services, which are of great interest to the Jordanian public.
引用
收藏
页码:996 / 1001
页数:6
相关论文
共 32 条
  • [11] An international validation study of the EORTC QLQ-INFO25 questionnaire: An instrument to assess the information given to cancer patients
    Ignacio Arraras, Juan
    Greimel, Eva
    Sezer, Orhan
    Chie, Wei-Chu
    Bergenmar, Mia
    Costantini, Anna
    Young, Teresa
    Vlasic, Karin Kuljanic
    Velikova, Galina
    [J]. EUROPEAN JOURNAL OF CANCER, 2010, 46 (15) : 2726 - 2738
  • [12] Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer
    Mayer, Deborah K.
    Terrin, Norma C.
    Kreps, Gary L.
    Menon, Usha
    McCance, Kathy
    Parsons, Susan K.
    Mooney, Kathleen H.
    [J]. PATIENT EDUCATION AND COUNSELING, 2007, 65 (03) : 342 - 350
  • [13] Cross-cultural issues in the disclosure of cancer
    Mitchell, JL
    [J]. CANCER PRACTICE, 1998, 6 (03) : 153 - 160
  • [14] Disclosure preferences regarding cancer diagnosis and prognosis: to tell or not to tell?
    Miyata, H
    Takahashi, M
    Saito, T
    Tachimori, H
    Kai, I
    [J]. JOURNAL OF MEDICAL ETHICS, 2005, 31 (08) : 447 - 451
  • [15] Information disclosure and decision-making: the Middle East versus the Far East and the West
    Mobeireek, A. F.
    Al-Kassimi, F.
    Al-Zahrani, K.
    Al-Shimemeri, A.
    al-Damegh, S.
    Al-Amoudi, O.
    Al-Eithan, S.
    Al-Ghamdi, B.
    Gamal-Eldin, M.
    [J]. JOURNAL OF MEDICAL ETHICS, 2008, 34 (04) : 225 - 229
  • [16] Disclosure of cancer diagnosis and quality of life in cancer patients: should it be the same everywhere?
    Montazeri, Ali
    Tavoli, Azadeh
    Mohagheghi, Mohammad Ali
    Roshan, Rasool
    Tavoli, Zahra
    [J]. BMC CANCER, 2009, 9
  • [17] Morrison TL, 2015, JAPANESE STUDIES, P1
  • [18] Motlagh A, 2014, ARCH IRAN MED, V17, P232, DOI 014174/AIM.004
  • [19] Patterns and predictors of disclosure of a diagnosis of cancer
    Munro, Heather
    Scott, Suzanne E.
    King, Alex
    Grunfeld, Elizabeth A.
    [J]. PSYCHO-ONCOLOGY, 2015, 24 (05) : 508 - 514
  • [20] PRESENTATION OF INFORMATION TO CANCER-PATIENTS - A COMPARISON OF 2 CENTERS IN THE UK AND USA
    NEWALL, DJ
    GADD, EM
    PRIESTMAN, TJ
    [J]. BRITISH JOURNAL OF MEDICAL PSYCHOLOGY, 1987, 60 : 127 - 131