"Saying goodbye all alone with no close support was difficult"- Dying during the COVID-19 pandemic: an online survey among bereaved relatives about end-of-life care for patients with or without SARS-CoV2 infection

被引：37

作者：

Schloesser, Karlotta ^{[1
,2
]}

Simon, Steffen T. ^{[1
,2
,3
]}

Pauli, Berenike ^{[2
,3
]}

Voltz, Raymond ^{[1
,2
,3
,4
,5
]}

Jung, Norma ^{[2
,6
]}

Leisse, Charlotte ^{[2
,6
]}

van der Heide, Agnes ^{[7
]}

Korfage, Ida J. ^{[7
]}

Pralong, Anne ^{[1
,2
]}

Bausewein, Claudia ^{[8
,9
]}

Joshi, Melanie ^{[1
,2
]}

Strupp, Julia ^{[1
,2
]}

机构：

[1] Univ Cologne, Fac Med, Dept Palliat Med, Kerpener St 62, D-50937 Cologne, Germany

[2] Univ Cologne, Univ Hosp, Kerpener St 62, D-50937 Cologne, Germany

[3] Univ Cologne, Fac Med, Ctr Integrated Oncol Aachen Bonn Cologne Dusseldo, Cologne, Germany

[4] Univ Cologne, Fac Med, Clin Trials Ctr ZKS, Cologne, Germany

[5] Univ Cologne, Ctr Hlth Serv Res, Fac Med, Cologne, Germany

[6] Univ Cologne, Dept Internal Med 1, Fac Med, Cologne, Germany

[7] Erasmus MC, Dept Publ Hlth, Univ Med Ctr Rotterdam, Rotterdam, Netherlands

[8] LMU Univ Hosp Munich, Dept Palliat Med, Munich, Germany

[9] Comprehens Canc Ctr Munich CCCM, Munich, Germany

来源：

BMC HEALTH SERVICES RESEARCH | 2021年 / 21卷 / 01期

关键词：

Communication; Palliative care; SARS-CoV2; Relatives; Dying; Support; Post-bereavement survey; Visiting restrictions; FAMILY CAREGIVERS; PALLIATIVE CARE; NEGATIVE AFFECT; VALIDATION;

D O I：

10.1186/s12913-021-06987-z

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background During the SARS-CoV2 pandemic, protection measures, as well as visiting restrictions, had a severe impact on seriously ill and dying patients and their relatives. The study aims to describe the experiences of bereaved relatives of patients who died during the SARS-CoV2 pandemic, regardless of whether patients were infected with SARS-CoV2 or not. As part of this, experiences related to patients' end-of-life care, saying goodbye, visiting restrictions and communication with the healthcare team were assessed. Methods An open observational post-bereavement online survey with free text options was conducted with 81 bereaved relatives from people who died during the pandemic in Germany, with and without SARS-CoV2 diagnosis. Results 67/81 of the bereaved relatives were female, with a mean age of 57.2 years. 50/81 decedents were women, with a mean age of 82.4 years. The main underlying diseases causing death were cardiovascular diseases or cancer. Only 7/81 of the patients were infected with SARS-CoV2. 58/81 of the relatives felt burdened by the visiting restrictions and 60/81 suffered from pandemic-related stress. 10 of the patients died alone due to visiting restrictions. The burden for relatives in the hospital setting was higher compared to relatives of patients who died at home. 45/81 and 44/81 relatives respectively reported that physicians and nurses had time to discuss the patient's condition. Nevertheless, relatives reported a lack of proactive communication from the healthcare professionals. Conclusions Visits of relatives play a major role in the care of the dying and have an impact on the bereavement of relatives. Visits must be facilitated, allowing physical contact. Additionally, virtual contact with the patients and open, empathetic communication on the part of healthcare professionals is needed.

引用

页数：11

共 45 条

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