Use of patient registries and administrative datasets for the study of pediatric cancer

被引：30

作者：

Rice, Henry E. ^{[1
,2
]}

Englum, Brian R. ^{[1
]}

Gulack, Brian C. ^{[1
]}

Adibe, Obinna O. ^{[1
,2
]}

Tracy, Elizabeth T. ^{[1
,2
]}

Kreissman, Susan G. ^{[2
]}

Routh, Jonathan C. ^{[1
,2
]}

机构：

[1] Duke Univ, Med Ctr, Dept Surg, Durham, NC 27710 USA

[2] Duke Univ, Med Ctr, Dept Pediat, Durham, NC 27710 USA

来源：

PEDIATRIC BLOOD & CANCER | 2015年 / 62卷 / 09期

基金：

美国国家卫生研究院;

关键词：

administrative dataset; patient registry; pediatric cancer; secondary analysis; FREESTANDING CHILDRENS HOSPITALS; NEPHRON-SPARING SURGERY; ACUTE MYELOID-LEUKEMIA; UNITED-STATES; RESOURCE UTILIZATION; RESEARCH NETWORK; ONCOLOGY GROUP; COHORT; ADOLESCENTS; MORTALITY;

D O I：

10.1002/pbc.25506

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Analysis of data from large administrative databases and patient registries is increasingly being used to study childhood cancer care, although the value of these data sources remains unclear to many clinicians. Interpretation of large databases requires a thorough understanding of how the dataset was designed, how data were collected, and how to assess data quality. This review will detail the role of administrative databases and registry databases for the study of childhood cancer, tools to maximize information from these datasets, and recommendations to improve the use of these databases for the study of pediatric oncology. Pediatr Blood Cancer 2015;62:1495-1500. (c) 2015 Wiley Periodicals, Inc.

引用

页码：1495 / 1500

页数：6

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