Barriers to the management of patients with surgically remediable intractable epilepsy

被引:16
作者
Swarztrauber, K [1 ]
机构
[1] Oregon Hlth & Sci Univ, Dept Neurol, Portland, OR 97201 USA
[2] Portland VA Med Ctr, Hlth Serv Res, Parkinsons Dis Res Educ & Clin Ctr, Portland, OR USA
关键词
D O I
10.1017/S1092852900008506
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
It is estimated that only a small proportion of patients with surgically remediable intractable epilepsy receive surgical treatment. There are multiple reasons why this is the case. Patients with intractable epilepsy are sometimes severely disabled and disability can create barriers to getting recommended care. Patients with epilepsy are not well informed about their condition and the available treatments. The incidence of epilepsy is similar in minority populations, and surgically remediable epilepsy frequently presents in adolescence. Nevertheless, these vulnerable populations have specific barriers to receiving epilepsy care, which are often not addressed. In addition, despite scientific evidence for the benefits of the surgical treatment of epilepsy, many healthcare providers do not recommend or adequately discuss surgery with patients. Solutions to these barriers will require interventions that result in informed and capable patients who actively participate in their care and healthcare providers who practice culturally sensitive, recommended care.
引用
收藏
页码:146 / 152
页数:7
相关论文
共 54 条
[1]   The incidence of epilepsy and unprovoked seizures in multiethnic, urban health maintenance organizations [J].
Annegers, JF ;
Dubinsky, S ;
Coan, SP ;
Newmark, ME ;
Roht, L .
EPILEPSIA, 1999, 40 (04) :502-506
[2]  
[Anonymous], OVERVIEW RACE HISPAN
[3]  
[Anonymous], 2003, MAKING CONNECTIONS F
[4]   COST OF EPILEPSY IN THE UNITED-STATES - A MODEL-BASED ON INCIDENCE AND PROGNOSIS [J].
BEGLEY, CE ;
ANNEGERS, JF ;
LAIRSON, DR ;
REYNOLDS, TF ;
HAUSER, WA .
EPILEPSIA, 1994, 35 (06) :1230-1243
[5]  
BERG AT, 2004, CNS SPECTRUMS, P2136
[6]   National cancer clinical trials: Children have equal access; Adolescents do not [J].
Bleyer, WA ;
Tejeda, H ;
Murphy, SB ;
Robison, LL ;
Ross, JA ;
Pollock, BH ;
Severson, RK ;
Brawley, OW ;
Smith, MA ;
Ungerleider, RS .
JOURNAL OF ADOLESCENT HEALTH, 1997, 21 (06) :366-373
[7]  
CHADWICK D, 1990, ACT NEUR S, V50, P117
[8]  
Collins TC, 2002, MED CARE, V40, P27
[9]  
DAWKINS JL, 1993, BRIT J GEN PRACT, V43, P453
[10]  
DiIorio C, 1995, J Neurosci Nurs, V27, P29