2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis

被引:104
作者
Bech, Bianca [1 ]
Primdahl, Jette [2 ,3 ]
van Tubergen, Astrid [4 ,5 ]
Voshaar, Marieke [6 ]
Zangi, Heidi A. [7 ]
Barbosa, Lurdes [8 ]
Bostrom, Carina [9 ,10 ]
Boteva, Boryana [11 ]
Carubbi, Francesco [12 ,13 ]
Fayet, Francoise [14 ]
Ferreira, Ricardo J. O. [15 ,16 ]
Hoeper, Kirsten [17 ]
Kocher, Agnes [18 ,19 ]
Kukkurainen, Marja Leena [20 ]
Lion, Vivienne [21 ]
Minnock, Patricia [22 ]
Moretti, Antonella [23 ]
Ndosi, Mwidimi [24 ]
Nikolic, Milena Pavic [25 ]
Schirmer, Michael [21 ]
Smucrova, Hana [26 ]
de la Torre-Aboki, Jenny [27 ]
Waite-Jones, Jennifer [28 ]
van Eijk-Hustings, Yvonne [29 ]
机构
[1] Rigshosp Glostrup, Ctr Head & Orthopaed, Ctr Rheumatol & Spine Dis, DK-2600 Glostrup, Denmark
[2] Univ Hosp Southern Denmark, Danish Hosp Rheumat Dis, Sonderborg, Denmark
[3] Univ Southern Denmark, Dept Reg Hlth Res, Odense, Denmark
[4] Maastricht Univ, Med Ctr, Dept Med, Div Rheumatol, Maastricht, Netherlands
[5] Maastricht Univ, CAPHRI Care & Publ Hlth Res Inst, Maastricht, Netherlands
[6] Univ Twente, Dept Psychol Hlth & Technol, Enschede, Netherlands
[7] Diakonhjemmet Hosp, Dept Rheumatol, Natl Advisory Unit Rehabil Rheumatol, Oslo, Norway
[8] Hosp Garcia de Orta, Dept Rheumatol, Almada, Portugal
[9] Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Physiotherapy, Stockholm, Sweden
[10] Karolinska Univ Hosp, Allied Hlth Profess Funct, Funct Area Occupat Therapy & Physiotherapy, Stockholm, Sweden
[11] BOPRD, Sofia, Bulgaria
[12] Univ Aquila, Sch Med, Dept Biotechnol & Appl Clin Sci, Rheumatol Unit, Laquila, Italy
[13] ASL1 Avezzano Sulmona Laquila, Dept Med, Laquila, Italy
[14] Hop Gabriel Montpied, Dept Rheumatol, Clermont Ferrand, France
[15] Ctr Hosp & Univ Coimbra, Dept Rheumatol, Coimbra, Portugal
[16] Nursing Sch Coimbra, Hlth Sci Res Unit Nursing UICiSA E, Coimbra, Portugal
[17] Hannover Med Sch, Clin Immunol & Rheumatol, Hannover, Germany
[18] Univ Basel, DPH, INS, Basel, Switzerland
[19] Univ Hosp Bern, Inselspital, Dept Rheumatol Immunol & Allergol, Bern, Switzerland
[20] Lahti Univ Appl Sci, Fac Social & Hlth Care, Lahti, Finland
[21] Med Univ Innsbruck, Clin 2, Dept Internal Med, Innsbruck, Austria
[22] Our Ladys Hosp & Care Serv, Rheumat Musculoskeletal Dis Unit, Dublin, Ireland
[23] Univ Politecn Marche, Osped C Urbani, Clin Reumatol, Jesi, An, Italy
[24] Univ West England, Dept Nursing & Midwifery, Bristol, Avon, England
[25] Univ Med Ctr Ljubljana, Dept Rhematol, Ljubljana, Slovenia
[26] Inst Rheumatol, Dept Rehabil, Prague, Czech Republic
[27] Alicante Gen & Univ Hosp, Day Hosp Unit, Alicante, Spain
[28] Univ Leeds, Sch Healthcare, Leeds, W Yorkshire, England
[29] Maastricht Univ, Med Ctr, Dept Clin Epidemiol & Med Technol Assessment, Maastricht, Netherlands
关键词
RHEUMATOLOGIST FOLLOW-UP; DISEASE-ACTIVITY; HEALTH-PROFESSIONALS; CARDIOVASCULAR RISK; PATIENT EDUCATION; SELF-EFFICACY; LED CARE; PATIENTS EXPERIENCES; ECONOMIC EVALUATIONS; RHEUMATIC-DISEASES;
D O I
10.1136/annrheumdis-2019-215458
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.
引用
收藏
页码:61 / 68
页数:8
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