'Someone to talk to' and 'pain control': what people expect from a specialist palliative care team

被引:33
作者
Jarrett, N [1 ]
Payne, S [1 ]
Turner, P [1 ]
Hillier, R [1 ]
机构
[1] Univ Southampton, Hlth Res Unit, Sch Occupat Therapy & Physiotherapy, Southampton SO17 1BJ, Hants, England
关键词
palliative care; terminal care; patient care; caregivers;
D O I
10.1191/026921699669165706
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
This paper presents a qualitative analysis of a subsample of data from a larger investigation into general practitioner referrals to specialist palliative care services (SPCS). The aim was to identify the expectations and perceptions of patients with advanced cancer and their relatives. Twenty-nine individuals were interviewed (18 patients, 11 relatives). Qualitative analysis of the interview transcripts was undertaken using an approach based on interpretative phenomenological analysis. The results indicated that SPCS were perceived as providing psychosocial services, characterized as 'support' and 'someone to talk to'. SPCS were expected to have 'expertise in symptom control', particularly in relation to pain management, The study demonstrated that patients' and relatives' expectations of a referral to SPCS were of psychosocial support and symptom control. II is argued that the implications of this restricted view of SPCS may mean that other salient concerns are not raised by patients and relatives.
引用
收藏
页码:139 / 144
页数:6
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