Images of life siblings of children with Down syndrome

被引:14
作者
Rampton, Tammy B.
Rosemann, Jessica L.
Latta, Aimee L.
Mandleco, Barbara L.
Roper, Susanne Olsen
Dyches, Tina T.
机构
[1] Brigham Young Univ, Coll Nursing, Provo, UT 84602 USA
[2] Brigham Young Univ, Sch Family Life, Provo, UT 84602 USA
[3] Brigham Young Univ, Dept Counseling Psychol & Special Educ, Provo, UT 84602 USA
关键词
Down syndrome; photography; childbearing/child rearing; family/participant group;
D O I
10.1177/1074840707308580
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
This qualitative, descriptive study used photography to capture important symbols in the lives of 16 siblings living in families raising a child with Down syndrome (CWDS). Content analysis revealed two categories: people/nonpeople. The people category included family members and friends, whereas the nonpeople category included objects, animals, and buildings. Similarities/differences also were noted according to age and gender. Seven- to 9-year-olds took more snapshots of themselves and their parents than did the other age groups; the 10-to 12-year-olds and 13- to 15-year-olds took more photographs of the CWDS than did the younger age group. Female siblings took more snapshots of their typically developing brothers/sisters, family members in mixed groups, and people not in their family than did male siblings. Male siblings took more photographs of their parents and themselves. Results validate the importance of gathering qualitative data from children and confirm the use of photography as one of these methods.
引用
收藏
页码:420 / 442
页数:23
相关论文
共 72 条
[1]   A PRELIMINARY-STUDY OF THE SELF-DIRECTED PHOTOGRAPHY OF MIDDLE-CLASS, HOMELESS, AND MOBILITY-IMPAIRED CHILDREN [J].
AITKEN, SC ;
WINGATE, J .
PROFESSIONAL GEOGRAPHER, 1993, 45 (01) :65-72
[2]  
[Anonymous], MAJOR TRENDS ISSUES
[3]  
[Anonymous], 2000, Rehabilitation Education
[4]  
[Anonymous], CHILDRENS HLTH CARE
[5]  
[Anonymous], J HOSPICE PALLIATIVE
[6]  
Austrian S. G, 2002, DEV THEORIES LIFE CY, V2nd
[7]  
BAGENHOLM A, 1991, J MENT DEFIC RES, V35, P291
[8]   Photovoice: Use of a participatory action research method to explore the chronic pain experience in older adults [J].
Baker, Tamara A. ;
Wang, Caroline C. .
QUALITATIVE HEALTH RESEARCH, 2006, 16 (10) :1405-1413
[9]  
Banister E., 2006, QUALITATIVE MARKET R, V8, P157
[10]  
Bee H., 2002, LIFESPAN DEV, V3rd