Health-related quality of life in patients with multiple sclerosis

被引:0
作者
Vazquez Gomez, Lazaro Aurelio [1 ]
Hidalgo Mesa, Carlos [2 ]
Beltran Gonzalez, Benita Mabel [1 ]
Broche Perez, Yunier [3 ]
Mederos Herrera, Ana Maria [4 ]
机构
[1] Univ Ciencias Med Villa Clara, Hosp Prov Clin Quirurg Univ Arnaldo Milian Castro, Villa Clara, Cuba
[2] Hosp Mil Clin Quirurg Univ Manuel Piti Fajardo, Villa Clara, Cuba
[3] Univ Cent Martha Abreu Villas, Villa Clara, Cuba
[4] Hosp Univ Pediat Jose Luis Miranda, Villa Clara, Cuba
来源
MEDISUR-REVISTA DE CIENCIAS MEDICAS DE CIENFUEGOS | 2022年 / 20卷 / 01期
关键词
quality of life; multiple sclerosis;
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background: multiple sclerosis is a disease characterized by outbreaks of disability in any functional system that are produced by inflammation and demyelination of the central nervous system. Objective: to determine the health-related quality of life in patients with multiple sclerosis. Methods: a quasi-experimental, prospective longitudinal study with all patients diagnosed with multiple sclerosis with follow-up in Villa Clara during the period from 2017 to 2019. The study population consisted of 86 patients who were part of a multidisciplinary follow-up strategy. Results: regarding the modifications of the mental and physical component of the health state, it was observed that the mean score was 30.4 +/- 9.7 and 39.9 +/- 10.2 respectively before the strategy and 38.8 +/- 9.3 and 51.5 +/- 9.3 later respectively; so they moved to higher levels. On the visual impairment impact scale, the mean was 10.8 +/- 2.2 before and 7.1 +/- 2.8 after. Regarding the modifications in the mental health inventory, it was 58.1 +/- 14.8 before and 47.2 +/- 15.1 after. There was improvement in the impact of fatigue; pain effect; sexual satisfaction; bladder control; bowel control; impact of visual impairment; perceived cognitive deficit; mental health and social support. Conclusions: satisfactory modifications were achieved in the perceived quality of life scale, in the mental and physical health components, for which there was an improvement in health-related quality of life.
引用
收藏
页码:44 / 51
页数:8
相关论文
共 15 条
[1]   CHALLENGES IN TRANSLATING THE MULTIPLE SCLEROSIS INTERNATIONAL QUALITY OF LIFE (MUSIQOL) QUESTIONNAIRE IN 57 LANGUAGES [J].
Boucher, F. ;
Baumstarck, K. ;
Acquadro, C. .
VALUE IN HEALTH, 2015, 18 (07) :A762-A762
[2]   Standing up in multiple sclerosis (SUMS): protocol for a multi-centre randomised controlled trial evaluating the clinical and cost effectiveness of a home-based self-management standing frame programme in people with progressive multiple sclerosis [J].
Freeman, J. A. ;
Hendrie, W. ;
Creanor, S. ;
Jarrett, L. ;
Barton, A. ;
Green, C. ;
Marsden, J. ;
Rogers, E. ;
Zajicek, J. .
BMC NEUROLOGY, 2016, 16
[3]  
Gracia F, 2017, J. Epidem. Prev. Med, V3, P134, DOI [10.1159/000204912.5, DOI 10.1159/000204912.5]
[4]   Costs of multiple sclerosis in Panama from societal, patient perspectives and health-related quality of life [J].
Gracia, Fernando ;
Larreategui, Mario ;
Rodriguez, Gaudencio ;
Benzadon, Aaron ;
Ortiz, Michelle ;
Morales, Divian ;
Dominguez, Claudia ;
Enith Carrillo, Rosa ;
Valderrama, Carlos ;
Lizan, Luis ;
Armien, Blas .
PLOS ONE, 2018, 13 (10)
[5]  
Mendez Barbosa EA, 2021, RECIAMUC, V5
[6]  
Mesa Walwyn I, 2018, REV CUBANA MED FIS R, V10
[7]   Epidemiology of multiple sclerosis in Spain [J].
Perez-Carmona, Natalia ;
Fernandez-Jover, Eduardo ;
Sempere, Angel P. .
REVISTA DE NEUROLOGIA, 2019, 69 (01) :32-38
[8]   Multiple Sclerosis: A Global Concern with Multiple Challenges in an Era of Advanced Therapeutic Complex Molecules and Biological Medicines [J].
Rivera, Victor M. .
BIOMEDICINES, 2018, 6 (04)
[9]  
Rojas E, 2019, AN FAC MED, V80
[10]   Multiple sclerosis [J].
Thompson, Alan J. ;
Baranzini, Sergio E. ;
Geurts, Jeroen ;
Hemmer, Bernhard ;
Ciccarelli, Olga .
LANCET, 2018, 391 (10130) :1622-1636