Internet and electronic resources for inflammatory bowel disease: A primer for providers and patients

被引:39
作者
Fortinsky, Kyle J. [1 ,2 ]
Fournier, Marc R. [3 ]
Benchimol, Eric I. [1 ,2 ,4 ]
机构
[1] Childrens Hosp Eastern Ontario, Div Gastroenterol Hepatol & Nutr, Ottawa, ON K1H 8L1, Canada
[2] Univ Ottawa, Dept Pediat, Ottawa, ON K1N 6N5, Canada
[3] Univ Ottawa, Dept Med, Ottawa, ON, Canada
[4] Univ Ottawa, Dept Epidemiol & Community, Ottawa, ON, Canada
关键词
inflammatory bowel disease; Crohn's disease; ulcerative colitis; internet; e-Health; patient education; SOCIAL NETWORKING; INFORMATION; ADOLESCENTS; TWITTER;
D O I
10.1002/ibd.22834
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Patients with inflammatory bowel disease (IBD) are increasingly turning to the Internet to research their condition and engage in discourse on their experiences. This has resulted in new dynamics in the relationship between providers and their patients, with misinformation and advertising potentially presenting barriers to the cooperative patientprovider partnership. This article addresses important issues of online IBD-related health information and social media activity, such as quality, reliability, objectivity, and privacy. We reviewed the medical literature on the quality of online information provided to IBD patients, and summarized the most commonly accessed Websites related to IBD. We also assessed the activity on popular social media sites (such as Facebook, Twitter, and YouTube), and evaluated currently available applications for use by IBD patients and providers on mobile phones and tablets. Through our review of the literature and currently available resources, we developed a list of recommended online resources to strengthen patient participation in their care by providing reliable, comprehensive educational material. (Inflamm Bowel Dis 2012;)
引用
收藏
页码:1156 / 1163
页数:8
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