Parental information needs in chronic renal failure and diabetes mellitus

被引:19
作者
Collier, J
Pattison, H
Watson, A
Sheard, C
机构
[1] Univ Nottingham, Queens Med Ctr, Div Child Hlth, Nottingham NG7 2UH, England
[2] Univ Birmingham, Sch Med, Dept Gen Practice, Birmingham B15 2TT, W Midlands, England
[3] Nottingham City Hosp NHS Trust, Children & Young Peoples Kidney Unit, Nottingham NG5 1PB, England
[4] Univ Nottingham, Sch Med, Dept Behav Sci, Nottingham NG7 2UH, England
关键词
chronic renal failure; diabetes mellitus; information needs; psychosocial care;
D O I
10.1007/PL00008413
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
The information needs of parents of children with end stage renal failure (ESRF) or with insulin dependent diabetes mellitus (IDDM) were assessed by questionnaires over a 2-year period. Questionnaires were posted on seven occasions at 4-monthly intervals and were sent to both mothers and fathers. Most information needs were reported to be for detailed test results, for new information about the condition and about the child's future social development. Questions responsible for the three highest scores were concerned with the future: the child's fertility; their social, career and marriage prospects; and the hope for a new improved treatment. For the IDDM mothers, scores were significantly different depending on age of the child (P = 0.02). Change in treatment mode had no significant effect on the information needs of parents of children with ESRF (P = 0.81). Occupation was significantly associated with the mean general information needs scores for parents, with occupations of a lower socioeconomic status associated with higher information needs scores. There were no significant differences between the reported mean general information needs scores of parents of children with ESRF and of parents of children with IDDM (P = 0.69) or between mothers and fathers mean general information needs scores (P = 0.58). Conclusion Multidisciplinary team members need to tailor information to the needs of the individual families and be sensitive to socioeconomic factors and communication issues.
引用
收藏
页码:31 / 36
页数:6
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