Narrative medicine in metastatic prostate cancer reveals ways to improve patient awareness & quality of care

被引:26
作者
De Vincentis, Giuseppe [1 ]
Monari, Fabio [2 ]
Baldari, Sergio [3 ]
Salgarello, Matteo [4 ]
Frantellizzi, Viviana [1 ]
Salvi, Elisabetta [2 ]
Reale, Luigi [5 ]
Napolitano, Silvia [5 ]
Conti, Giario [6 ,7 ]
Cortesi, Enrico [8 ]
机构
[1] Sapienza Univ Rome, Dept Radiol Sci Oncol & Anatomopathol, Rome, Italy
[2] Azienda Osped Univ Bologna Policlin Sant Orsola M, UO Metab Radiat Unit Bologna, Emilia Romagna, Italy
[3] Univ Messina, Dept Biomed Sci & Morphol & Funct Images, Messina, Italy
[4] Sacro Cuore Don Calabria Hosp, Div Nucl Med, Negraro, VR, Italy
[5] ISTUD Fdn, Healthcare Area, Milan, Italy
[6] St Anna Hosp, Dept Urol, Como, Italy
[7] Segretario Nazl Societa Italiana Urol Oncol SIUrO, Bologna, Italy
[8] Sapienza Univ Rome, Policlin Umberto 1, Med Oncol, Rome, Italy
关键词
metastatic castration-resistant prostate cancer; narrative medicine; quality of life; ANDROGEN DEPRIVATION THERAPY; LIFE; RADIUM-223; OUTCOMES; HEALTH; MEN; RADIOTHERAPY; SURGERY; JOURNEY; HOPE;
D O I
10.2217/fon-2018-0318
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Aim: To describe the journey of patients with metastatic castration-resistant prostate cancer (mCRPC) in treatment with radium-223. Methods: A multiperspective analysis was performed using narrative medicine in four Italian centers. Results: The substantial impact of mCRPC on quality of life through all phases of the disease was described. After an initial lack of awareness of the disease or denial of its effects, symptoms of pain, fatigue and side effects often led to sadness, fear and loneliness. The majority underwent radium-223 therapy positively, restoring their quality of life and routine activities. Conclusion: Using narrative medicine, the importance of a patient-centered approach in the pathway of care for patients with mCRPC through all the stages of the disease was highlighted.
引用
收藏
页码:2821 / 2832
页数:12
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