Pediatric Research and the Return of Individual Research Results

被引：29

作者：

Avard, Denise ^{[1
]}

Senecal, Karine ^{[1
]}

Madadi, Parvaz ^{[2
,3
,4
]}

Sinnett, Daniel ^{[5
,6
,7
]}

机构：

[1] McGill Univ, Ctr Genom & Policy, Montreal, PQ H3A 2T5, Canada

[2] Hosp Sick Children, Toronto, ON, Canada

[3] Canadian Pharmacogen Network Drug Safety, Vancouver, BC, Canada

[4] Quebec Perinatal Res Training Network, Wendake, PQ, Canada

[5] Univ Montreal, Dept Pediat, Montreal, PQ H3C 3J7, Canada

[6] Univ Montreal, Dept Biochem, Montreal, PQ H3C 3J7, Canada

[7] St Justine Univ Hosp, Res Ctr, Childhood Leukemia Genet Lab, Montreal, PQ, Canada

来源：

JOURNAL OF LAW MEDICINE & ETHICS | 2011年 / 39卷 / 04期

基金：

加拿大健康研究院;

关键词：

INCIDENTAL FINDINGS; GENETIC RESEARCH; CHILDREN; CANCER; CHILDHOOD; ADOLESCENTS; SURVIVORS; LEUKEMIA; MOTHERS; ISSUES;

D O I：

10.1111/j.1748-720X.2011.00626.x

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

The return of individual research results to participants raises many socio-ethical issues and is even more challenging when the participant is a child. The objective of this article is to present an overview of the few ethical guidelines and relevant literature addressing the return of individual results in pediatric research. By reviewing policies and the literature, we present some overarching considerations and delineate contextual issues in order to propose a framework. © 2011 American Society of Law, Medicine & Ethics, Inc.

引用

页码：593 / 604

页数：12

共 55 条

[1] Ethical issues in health research in children [J].

Albersheim, Susan ;

Fernandez, Conrad ;

Hilliard, Robert ;

Razack, Saleem ;

Templeton, Christina ;

Tsai, Ellen .

PAEDIATRICS & CHILD HEALTH, 2008, 13 (08) :707-712

[2]

[Anonymous], PUBL HLTH ER GEN BAS

[3]

[Anonymous], 2020, POL AP FORSKN

[4]

[Anonymous], 2009, GUID HUM BIOB GEN RE

[5]

[Anonymous], 1989, UN CONV RIGHTS CHILD

[6]

[Anonymous], 2000, ILA REP C, V69, P137

[7] Guidelines for genetic testing of healthy children - addendum [J].

Arbour, Laura ;

Albersheim, Susan ;

Fernandez, Conrad ;

Hilliard, Robert ;

Razack, Saleem ;

Templeton, Christina ;

Tsai, Ellen .

PAEDIATRICS & CHILD HEALTH, 2008, 13 (04) :311-311

[8]

Avard D, 2011, BEST PRACTICES HLTH

[9]

Avard D., 2009, PAEDIAT RES CANADA, P23

[10] Deficiency of knowledge of genetics and genetic tests among general practitioners, gynecologists, and pediatricians: A global problem [J].

Baars, MJH ;

Henneman, L ;

ten Kate, LP .

GENETICS IN MEDICINE, 2005, 7 (09) :605-610

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