What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education

被引:164
作者
Moons, P
De Volder, E
Budts, W
De Geest, S
Elen, J
Waeytens, K
Gewillig, M
机构
[1] Katholieke Univ Leuven, Ctr Hlth Serv & Nursing Res, B-3000 Louvain, Belgium
[2] Katholieke Univ Leuven, Educ Support Off, B-3000 Louvain, Belgium
[3] Univ Hosp Leuven, Dept Congenital Cardiol, Louvain, Belgium
关键词
patient education; congenital heart disease; health behaviour;
D O I
10.1136/heart.86.1.74
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective-To assess how much adults with congenital heart disease understand about their heart defect, its treatment, and the preventive measures necessary to avoid complications. Design-Descriptive, cross sectional study. Setting-Adult congenital heart disease programme in one tertiary care centre in Belgium. Patients-62 adults with congenital heart disease (47 men; 15 women), median age 23 years. Main outcome measures-Patients' knowledge was assessed during an outpatient visit using the Leuven knowledge questionnaire for congenital heart diseases, a 33 item instrument developed for this study. Results-Patients had adequate knowledge (> 80% correct answers) about their treatment, frequency of follow up, dental practices, occupational choices, appropriateness of oral contraceptives, and the risks of pregnancy. Knowledge about the name and anatomy of the heart defect, the possibility of recurrent episodes of endocarditis during their lifetime, and the appropriateness of different physical activities was moderate (50-80%, correct answers). There was poor understanding (< 50% correct answers) about the reasons for follow up, the symptoms of deterioration of the heart disease, the definition, characteristics, and risk factors of endocarditis, the impact of smoking and alcohol on the heart disease, the hereditary nature of the condition, and the suitability of intrauterine devices as contraceptives. Conclusions-Adults with congenital heart disease have important gaps in their knowledge about their condition. The results of this study can be used as a basis for developing or optimising structured educational interventions to enhance patients' health behaviour.
引用
收藏
页码:74 / 80
页数:7
相关论文
共 22 条
[1]  
[Anonymous], 1997, The practice of patient education
[2]  
CANOBBIO MM, 1994, NURS CLIN N AM, V29, P357
[3]  
CETTA F, 1995, MAYO CLIN PROC, V70, P50
[4]   Piercing and tattooing in patients with congenital heart disease: Patient and physician perspectives [J].
Cetta, F ;
Graham, LC ;
Lichtenberg, RC ;
Warnes, CA .
JOURNAL OF ADOLESCENT HEALTH, 1999, 24 (03) :160-162
[5]   PARENTAL KNOWLEDGE OF BACTERIAL-ENDOCARDITIS PROPHYLAXIS [J].
CETTA, F ;
BELL, TJ ;
PODLECKI, DD ;
ROS, SP .
PEDIATRIC CARDIOLOGY, 1993, 14 (04) :220-222
[6]   ADOLESCENT KNOWLEDGE OF BACTERIAL-ENDOCARDITIS PROPHYLAXIS [J].
CETTA, F ;
PODLECKI, DC ;
BELL, TJ .
JOURNAL OF ADOLESCENT HEALTH, 1993, 14 (07) :540-542
[7]  
DAY MJ, 1994, NURS CLIN N AM, V29, P299
[8]  
Gochman D.S., 1997, HDB HLTH BEHAV RES, VI
[9]   PHYSICIAN-PATIENT COMMUNICATION - UNDERSTANDING CONGENITAL HEART-DISEASE [J].
KADEN, GG ;
MCCARTER, RJ ;
JOHNSON, SF ;
FERENCZ, C .
AMERICAN JOURNAL OF DISEASES OF CHILDREN, 1985, 139 (10) :995-999
[10]  
KANTOCH MJ, 1997, CAN J CARDIOL, V13, P611