Pediatric Palliative Care Provision Around the World: A Systematic Review

被引:124
作者
Knapp, Caprice [1 ]
Woodworth, Lindsey [1 ]
Wright, Michael [2 ]
Downing, Julia [3 ]
Drake, Ross [4 ,5 ]
Fowler-Kerry, Sue [6 ]
Hain, Richard [7 ]
Marston, Joan [8 ]
机构
[1] Univ Florida, Coll Med, Dept Hlth Outcomes & Policy, Gainesville, FL USA
[2] Univ Lancaster, Int Observ End Life Care, Lancaster, England
[3] Int Childrens Palliat Care Network, Kampala, Uganda
[4] Auckland City Hosp, Paediat Palliat Care Serv, Grafton, New Zealand
[5] Auckland City Hosp, Complex Pain Serv, Grafton, New Zealand
[6] Univ Saskatchewan, Coll Nursing, Saskatoon, SK S7N 0W0, Canada
[7] Cardiff Univ, Dept Child Hlth, Cardiff, S Glam, Wales
[8] Hosp & Palliat Care S Africa, Cape Town, South Africa
关键词
international; palliative care; pediatrics; provision; systematic review; QUALITY-OF-CARE; DYING CHILDREN; CANCER; LIFE; END; FAMILIES; PLACE; EXPERIENCES; ONCOLOGY; HOSPICE;
D O I
10.1002/pbc.23100
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Pediatric palliative care is recommended by many organizations. Yet, there is no information available on the progress that has been made in providing this care or the gaps that still exist in provision around the world. We conducted a systematic review to address this gap in knowledge. The systematic review identified 117 peer-reviewed and non-peer reviewed resources. Based on this information, each country was assigned a level of provision; 65.6% of countries had no known activities, 18.8% had capacity building activities, 9.9% had localized provision, and 5.7% had provision that was reaching mainstream providers. Understanding the geographic distribution in the level of provision is crucial for policy makers and funders. Pediatr Blood Cancer 2011; 57: 361-368. (C) 2011 Wiley-Liss, Inc.
引用
收藏
页码:361 / 368
页数:8
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