Parental Consent for the Use of Residual Newborn Screening Bloodspots Respecting Individual Liberty vs Ensuring Public Health

被引：8

作者：

Bayefsky, Michelle J. ^{[1
]}

Saylor, Katherine W. ^{[2
]}

Berkman, Benjamin E. ^{[1
,3
]}

机构：

[1] NIH, Ctr Clin, Dept Bioeth, 10 Ctr Dr,Bldg 10,Room 1C118, Bethesda, MD 20892 USA

[2] NHGRI, Div Policy Commun & Educ, NIH, Bethesda, MD 20892 USA

[3] NHGRI, Bioeth Core, NIH, Bethesda, MD 20892 USA

来源：

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION | 2015年 / 314卷 / 01期

关键词：

D O I：

10.1001/jama.2015.6175

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：21 / 22

页数：2

共 4 条

[1] Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research [J].

Botkin, Jeffrey R. ;

Rothwell, Erin ;

Anderson, Rebecca ;

Stark, Louisa ;

Goldenberg, Aaron ;

Lewis, Michelle ;

Burbank, Matthew ;

Wong, Bob .

PEDIATRICS, 2012, 129 (02) :231-238

[2] The Ethical Hazards and Programmatic Challenges of Genomic Newborn Screening [J].

Goldenberg, Aaron J. ;

Sharp, Richard R. .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2012, 307 (05) :461-462

[3] After 50 Years, Newborn Screening Continues to Yield Public Health Gains [J].

Kuehn, Bridget M. .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2013, 309 (12) :1215-1217

[4] Not without my Permission: Parents' Willingness to Permit Use of Newborn Screening Samples for Research [J].

Tarini, B. A. ;

Goldenberg, A. ;

Singer, D. ;

Clark, S. J. ;

Butchart, A. ;

Davis, M. M. .

PUBLIC HEALTH GENOMICS, 2010, 13 (03) :125-130

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