It's difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia

被引：1

作者：

Berube, Sarah ^{[1
,2
]}

Ogez, David ^{[1
,2
,4
]}

Aramideh, Jennifer ^{[1
,2
]}

Amesse, Claudine ^{[2
]}

Bourque, Claude J. ^{[2
,3
]}

Longpre, Claire ^{[2
]}

Muise, Lorraine ^{[2
]}

Levesque, Ariane ^{[1
,2
]}

Sultan, Serge ^{[1
,2
]}

机构：

[1] Univ Montreal, Dept Psychol, Montreal, PQ, Canada

[2] St Justine UHC, Montreal, PQ, Canada

[3] Univ Montreal, Dept Pediat, Montreal, PQ, Canada

[4] Hop Maison Neuve Rosemont, Montreal, PQ, Canada

来源：

HEALTH PSYCHOLOGY OPEN | 2021年 / 8卷 / 02期

基金：

加拿大健康研究院;

关键词：

children; clinical health psychology; exercise behavior; health behavior; illness; information; physical activity; qualitative method; body image; adherence; AUTONOMY SUPPORT; CHILDREN; INTERVENTION; CARE; ADHERENCE; EXERCISE; BENEFITS; PROGRAM; ADOLESCENTS; MOTHERS;

D O I：

10.1177/20551029211039920

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents' need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet's improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet's creation is also presented.

引用

页数：10