Caregiver factors related to emergency department utilization for youth with sickle cell disease

被引:8
作者
Pantaleao, Ashley [1 ]
DiPlacido, Joanne [2 ]
Guite, Jessica W. [3 ]
Zempsky, William T. [4 ]
机构
[1] Univ Maryland, Sch Publ Hlth, Dept Family Sci, College Pk, MD 20742 USA
[2] Cent Connecticut State Univ, Dept Psychol Sci, New Britain, CT 06050 USA
[3] Connecticut Childrens Med Ctr, Ctr Behav Hlth, Hartford, CT USA
[4] Connecticut Childrens Med Ctr, Div Pain & Palliat Med, Hartford, CT USA
关键词
HEALTH-CARE; PARENT EXPERIENCE; PAIN; CHILDREN; ADOLESCENTS; BURDEN; VALIDATION; COMMUNICATION; PERSPECTIVES; STRATEGIES;
D O I
10.1080/02739615.2018.1454838
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
This study addressed caregivers' stress, adjustment, and mechanisms related to treatment-seeking for children (age 6 to 16) with sickle cell disease (SCD). We hypothesized cues to action (i.e., perceived pain burden) would mediate relationships between psychosocial factors (i.e., stress, adjustment) and emergency department (ED) utilization. Perceived pain burden mediated relationships between stress that caregivers experience (a) communicating about SCD to their child and/or medical providers and (b) providing medical care for their child with ED utilization. Results suggest caregivers of children with SCD could benefit from interventions that enhance stress-management and communication skills with their child and health care providers.
引用
收藏
页码:59 / 74
页数:16
相关论文
共 41 条
[1]  
Barakat L.P., 2007, FAMILIES SYSTEMS HLT, V25, P147, DOI [DOI 10.1037/1091-7527.25.2.147, 10.1037/1091-7527.25.2.147]
[2]   Negative thinking as a coping strategy mediator of pain and internalizing symptoms in adolescents with sickle cell disease [J].
Barakat, Lamia P. ;
Schwartz, Lisa A. ;
Simon, Katherine ;
Radcliffe, Jerilynn .
JOURNAL OF BEHAVIORAL MEDICINE, 2007, 30 (03) :199-208
[3]   Quality of life among adolescents with sickle cell disease: mediation of pain by internalizing symptoms and parenting stress [J].
Barakat, Lamia P. ;
Patterson, Chavis A. ;
Daniel, Lauren C. ;
Dampier, Carlton .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2008, 6 (1)
[4]   Further validation of the parent experience of child illness scale [J].
Bonner, Melanie J. ;
Hardy, Kristina K. ;
Willard, Victoria W. ;
Hutchinson, Katherine C. ;
Guill, A. Bebe .
CHILDRENS HEALTH CARE, 2008, 37 (02) :145-157
[5]   Development and validation of the parent experience of child illness [J].
Bonner, MJ ;
Hardy, KK ;
Guill, AB ;
McLaughlin, C ;
Schweitzer, H ;
Carter, K .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2006, 31 (03) :310-321
[6]   Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events [J].
Brandow, Amanda M. ;
Brousseau, David C. ;
Panepinto, Julie A. .
BRITISH JOURNAL OF HAEMATOLOGY, 2009, 144 (05) :782-788
[7]   Burden of health-care of carers of children with sickle cell disease in Nigeria [J].
Brown, B. J. ;
Okereke, J. O. ;
Lagunju, A. ;
Orimadegun, A. E. ;
Ohaeri, J. U. ;
Akinyinka, O. O. .
HEALTH & SOCIAL CARE IN THE COMMUNITY, 2010, 18 (03) :289-295
[8]   A longitudinal examination predicting emergency room use in children with sickle cell disease and their caregivers [J].
Brown, RT ;
Connelly, M ;
Rittle, C ;
Clouse, B .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2006, 31 (02) :163-173
[9]  
Centers for Disease Control and Prevention, 2016, SICKL CELL DIS SCD D
[10]   A review of empirically supported psychosocial interventions for pain and adherence outcomes in sickle cell disease [J].
Chen, E ;
Cole, SW ;
Kato, PM .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2004, 29 (03) :197-209