The Latin American Brain Tumor Board teleconference: results of a web-based survey to evaluate participant experience utilizing this resource

被引:15
作者
Abu Arja, Mohammad H. [1 ,2 ]
Stanek, Joseph R. [1 ,2 ]
Morales La Madrid, Andres E. [3 ]
Lassaletta, Alvaro [4 ]
Bartels, Ute [5 ]
Qaddoumi, Ibrahim [6 ]
Finlay, Jonathan L. [1 ,2 ]
Osorio, Diana S. [1 ,2 ]
机构
[1] Nationwide Childrens Hosp, Dept Hematol Oncol Blood & Marrow Transplant, 700 Childrens Dr, Columbus, OH 43205 USA
[2] Ohio State Univ, 700 Childrens Dr, Columbus, OH 43205 USA
[3] Hosp St Joan de Deu, Dept Hematol & Oncol, Barcelona, Spain
[4] Hosp Infantil Univ Nino Jesus, Pediat Oncol Hematol & Stem Cell Transplant Dept, Madrid, Spain
[5] Hosp Sick Children, Dept Hematol Oncol, Toronto, ON, Canada
[6] St Jude Childrens Res Hosp, Global Pediat Med Dept, 332 N Lauderdale St, Memphis, TN 38105 USA
关键词
Childhood brain tumors; Central nervous system tumors; Global oncology; Lower and middle income countries; Neuro-oncology; Telemedicine; VIRTUAL INTERACTIVE PRESENCE; PEDIATRIC NEUROONCOLOGY; CHILDREN; CANCER; CARE; TELEMEDICINE; COLLABORATION; MALIGNANCIES; MANAGEMENT; DIAGNOSIS;
D O I
10.1007/s00381-018-4000-x
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
PurposeThe Latin American Brain Tumor Board (LATB) is a weekly teleconference connecting pediatric neuro-oncologists from referral centers in high-income countries with pediatric subspecialists from 20 Latin American countries since 2013. This survey explored the participants' experience utilizing this resource.MethodsA cross-sectional electronic questionnaire was distributed to 159 participants through email and Cure4Kids.ResultsNinety-five respondents (60%) from all the participating countries completed the survey. Sixty-one reported frequent-attendance (1 per month), 23 reported infrequent-attendance (<1 per month), and 11 never participated. The most frequently reported attendance-barriers were the subspecialist's workload (64%), the timing of the teleconference (38%), and Internet connectivity problems (29%). Subspecialist's workload was more frequently reported as a barrier compared with other barriers, in both the frequent- and infrequent-attendance groups (p<0.05), with the exception of the timing of the meeting in the infrequent-attendance group. More than 80% of attendees found the frequency and duration of the teleconference were sufficient. Utilizing Spanish as the primary language was reported to enhance the recommendations by 93% of the attendees. Moreover, 84% reported that the recommendations (almost) always fit the local circumstances. Furthermore, 99% of attendees found the teleconference provided a continuing medical education opportunity. Finally, 96% of attendees (almost) always found that the provided recommendations helped to improve the outcomes/quality of life of the patients.ConclusionsThe LATB teleconference provided a valuable tool for the management of pediatric brain tumors in Latin America as it provided a feasible and easy to access continued medical education opportunity for the participants.
引用
收藏
页码:257 / 265
页数:9
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