Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study

被引:38
作者
Bradshaw, Andy [1 ]
Dunleavy, Lesley [2 ]
Garner, Ian [2 ]
Preston, Nancy [2 ]
Bajwah, Sabrina [1 ]
Cripps, Rachel [1 ]
Fraser, Lorna K. [3 ]
Maddocks, Matthew [1 ]
Hocaoglu, Mevhibe [1 ]
Murtagh, Fliss E. M. [4 ]
Oluyase, Adejoke O. [1 ]
Sleeman, Katherine E. [1 ]
Higginson, Irene J. [1 ]
Walshe, Catherine [2 ]
机构
[1] Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabi, London SE5 9PJ, England
[2] Univ Lancaster, Int Observ End Life Care, Lancaster LA1 4AT, England
[3] Univ York, Dept Hlth Sci, Martin House Res Ctr, York YO10 5DD, N Yorkshire, England
[4] Univ Hull, Wolfson Palliat Care Res Ctr, Hull York Med Sch, Kingston Upon Hull HU6 7RX, N Humberside, England
基金
美国国家卫生研究院; 英国医学研究理事会;
关键词
Qualitative research; palliative care; hospice; MORAL DISTRESS;
D O I
10.1177/01410768221077366
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective: To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic. Design: Qualitative multiple case study using semistructured interviews between November 2020 and April 2021 as part of the CovPall study. Data were analysed using thematic framework analysis. Setting: Organisations providing specialist palliative services in any setting. Participants: Staff working in specialist palliative care, purposefully sampled by the criteria of role, care setting and COVID-19 experience. Main outcome measures: Experiences of working in palliative care during the COVID-19 pandemic. Results: Five cases and 24 participants were recruited (n = 12 nurses, 4 clinical managers, 4 doctors, 2 senior managers, 1 healthcare assistant, 1 allied healthcare professional). Central themes demonstrate how infection control constraints prohibited and diluted participants' ability to provide care that reflected their core values, resulting in experiences of moral distress. Despite organisational, team and individual support strategies, continually managing these constraints led to a 'crescendo effect' in which the impacts of moral distress accumulated over time, sometimes leading to burnout. Solidarity with colleagues and making a valued contribution provided `moral comfort' for some. Conclusions: This study provides a unique insight into why and how healthcare staff have experienced moral distress during the pandemic, and how organisations have responded. Despite their experience of dealing with death and dying, the mental health and well-being of palliative care staff was affected by the pandemic. Organisational, structural and policy changes are urgently required to mitigate and manage these impacts.
引用
收藏
页码:220 / 230
页数:11
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