An existential support program for people with cancer: Development and qualitative evaluation

被引:7
作者
Hvidt, Elisabeth Assing [1 ,2 ]
Hvidt, Niels Christian [1 ]
Graven, Vibeke [3 ,4 ]
la Cour, Karen [3 ,4 ]
Rottmann, Nina [1 ,3 ,4 ,7 ]
Thomsen, Karsten Flemming [1 ]
Lindqvist, Ole [6 ]
Rasmussen, Annette [3 ,4 ]
Skaarup, Helle [5 ]
Roessler, Kirsten Kaya [7 ]
机构
[1] Univ Southern Denmark, Dept Publ Hlth, Res Unit Gen Practice, JB Winslows Vej 9A, DK-5000 Odense C, Denmark
[2] Univ Southern Denmark, Dept Study Culture, Campusvej 55, DK-5230 Odense M, Denmark
[3] Reg Southern Denmark, Natl Knowledge Ctr Rehabil & Palliat Care, REHPA, Vestergade 17, DK-5800 Nyborg, Denmark
[4] Univ Southern Denmark, Vestergade 17, DK-5800 Nyborg, Denmark
[5] Logumkloster Refugium, Refngievej 1, DK-6240 Logumkloster, Denmark
[6] M22 Art & Creat, LV Malu Iela 22, LV-3301 Kuldiga, Latvia
[7] Univ Southern Denmark, Dept Psychol, Odense M, Denmark
关键词
Cancer; Existential distress; Existential support; Existential well-being; Program; Rehabilitation; Residential; Spirituality; Qualitative evaluation; MEDICAL-CARE; ART-THERAPY; OF-LIFE; HEALTH; ASSOCIATIONS; ILLNESS; INTERVENTIONS; PROVISION; DISTRESS; BREAST;
D O I
10.1016/j.ejon.2020.101768
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose: To describe the development process of an existential support program and to explore participants' evaluation of supportive/unsupportive processes of change. Method: A five-day existential support program called "Energy for life" was designed including three main elements: 1. existential group counseling, 2. art therapy and 3. interaction with nature and aesthetic surroundings. The program was implemented at two different study sites. Focus group interviews were conducted to evaluate the program. Results: 40 subjects were recruited (20 for each one of the two study sites) and 36 completed the study (31 women, five men) in the age range from 31 to 76 years and living with cancer across all stages and types. The program resulted in supportive processes of "existential sharing". The existential group counseling included a sharing process which led to an increased awareness and acceptance of one's existential situation and a preparation for the next steps in one's life. Art therapy offered a respite from the illness or the opportunity to express and share difficult thoughts and feelings connected to the illness experience. The interaction with nature/surroundings induced feelings of calmness and peace, increasing self-worth and spiritual belonging. Unsupportive processes of change related to the organization of the existential counseling groups, feelings of discomfort with creative engagement and feelings of distress provoked by a hospital environment. Conclusion: Through "Energy for life" existential concerns and distress were shared, contained and transformed. Knowledge has been gained about how an existential support program can be designed that explicitly focuses on alleviating patients' existential distress.
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页数:10
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