DEVELOPING MULTIDISCIPLINARY CLINICS FOR NEUROMUSCULAR CARE AND RESEARCH

被引：45

作者：

Paganoni, Sabrina ^{[1
,2
,3
]}

Nicholson, Katie ^{[1
,2
]}

Leigh, Fawn ^{[1
]}

Swoboda, Kathryn ^{[1
]}

Chad, David ^{[1
]}

Drake, Kristin ^{[1
,2
]}

Haley, Kellen ^{[1
,2
]}

Cudkowicz, Merit ^{[1
,2
]}

Berry, James D. ^{[1
,2
]}

机构：

[1] Harvard Med Sch, Massachusetts Gen Hosp, Dept Neurol, Boston, MA 02115 USA

[2] Massachusetts Gen Hosp, Neurol Clin Res Inst, Boston, MA 02114 USA

[3] Harvard Med Sch, Spaulding Rehabil Hosp, Dept Phys Med & Rehabil, Boston, MA USA

来源：

MUSCLE & NERVE | 2017年 / 56卷 / 05期

基金：

美国国家卫生研究院;

关键词：

advocacy; disease outcomes; genetics; healthcare costs; multidisciplinary care; telehealth; AMYOTROPHIC-LATERAL-SCLEROSIS; DUCHENNE MUSCULAR-DYSTROPHY; GUIDELINE DEVELOPMENT SUBCOMMITTEE; CHRONIC RESPIRATORY-FAILURE; 1ST GLOBAL APPROVAL; QUALITY-OF-LIFE; AMERICAN ACADEMY; HEALTH-CARE; ELECTRODIAGNOSTIC MEDICINE; CONSENSUS STATEMENT;

D O I：

10.1002/mus.25725

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Multidisciplinary care is considered the standard of care for both adult and pediatric neuromuscular disorders and has been associated with improved quality of life, resource utilization, and health outcomes. Multidisciplinary care is delivered in multidisciplinary clinics that coordinate care across multiple specialties by reducing travel burden and streamlining care. In addition, the multidisciplinary care setting facilitates the integration of clinical research, patient advocacy, and care innovation (e.g., telehealth). Yet, multidisciplinary care requires substantial commitment of staff time and resources. We calculated personnel costs in our ALS clinic in 2015 and found an average cost per patient visit of $580, of which only 45% was covered by insurance reimbursement. In this review, we will describe classic and emerging concepts in multidisciplinary care models for adult and pediatric neuromuscular disease. We will then explore the financial impact of multidisciplinary care with emphasis on sustainability and metrics to demonstrate quality and value.

引用

页码：848 / 858

页数：11

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